Postby LeonW » Thu Jun 08, 2017 7:06 pm
Hi All,
I was on pills for half a year; 8 three-week cycles with a short extra holiday between 3 and 4. Thus have no experience with the pump. But considering what is being said in this topic, I'm glad I did the pills (Capox)
What I really liked about the pills is that I was in control, each cycle. Day-1 (infusion day) was the conscious start of another round, each time. Found them important, long (08:30-17:30) day. Mostly boring, uneventful days, felt in good hands / plenty of attention. With weird neurological effects on the way back home once the day was over. Then feeling sick for three days (first day the worst (pretty bad), thereafter being much better each day.
I didn't mind taking the pills during the 2 weeks after infusion - convinced myself that they were my friends in the fight with the intruder. Living the 3rd week felt great each time. Referred to it as my holiday week, with time for some going out (careful shopping), celebrating another round under the belt (dinner+sip of wine in a nice, friendly, nearby Italian place), consciously gaining strength in preparation for the next cycle. Mentally celebrating each 3-week step.
I *think* that because of this all, I had less reason to feel a patient throughout the chemo months.
Again, I have no pump experience and may well be rationalizing. But being aware of the day-to-day effects was a big help. also knowing that the pills were my friends/allies, made it bearable. I've no regrets.
My 2-p.
Best wishes, Leon
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!