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I am SOOOOOOO Pissed!

Posted: Wed May 17, 2017 7:53 pm
by PainInTheAss
Summary: My onc's assistant never scheduled my early scans after I complained about suspicious pain to my Onc in February...never mind my regular scans that I should have had in April, I asked for early scans. I just found out that my next scans are set up for October!!!!

I am so pissed at this b****!

First off, I had my last scans at the end of October last year and they were all clear. Then at the end of December, I started have a weird pressure/discomfort in the liver/gall bladder area. After searching the forum and discovering the liver doesn't have nerve endings and most liver pain is felt in the advanced stages, I figured it was unlikely to be mets. It would come and go and never really felt like pain. I thought maybe it was my gall bladder.

After having this continue off and on in January, I decided to see my Onc early, so set up an appt for February. The office was extremely busy that day. When they are busy, my Onc and his assistant will tag team, with her coming in first and going over labs, etc. I didn't say anything to her... because she isn't my doctor!! Sorry, but I don't want to talk to the assistant, about anything!

He came in and seemed tired, rushed and in a hurry. It was very unusual. It was like cancer had gone on sale and their center had an unexpected rush. I mentioned my pain and after poking around, he said that we will do a PET and a bone scan, but it's unlikely it's liver mets or I would be losing weight and be really sick. If the PET is denied, we will do a CT and MRI. This PET denial process with an appeal can take a month, so I was probably not going to get scanned until April anyway. Oh well.

He leaves, and the assistant tells me that they will call me with the results, and I don't need to come back in for another appointment. WTF? It was like she was trying to free up his time or something. I didn't say anything, but thought I would just make an appointment anyway. F*** her.

So, I waited a month and was told my CT was pending. I thought that meant the PET and bone scan had been denied. I waited another week or two, still pending. Hmmm. Every time I call, still pending.

So now it's May. I explain my problem to someone, and they put me through to the head of test scheduling. She informs me that there was no PET or bone scan ever requested and that this CT was actually scheduled for October. So that b**** forgot to submit the request!!! Oh my god, really? Really, really, really? I know they were crazy busy that day, but really? Wow, wow, wow.

I get so upset and start crying. She apologizes and said they implemented a new appointment system and there were some "kinks." Yeah, I'll say.

All I could think is, "If I die because of that b****..."

I decide that I will be no more Mrs. Nice Guy. I will refuse to talk to the assistant without my Onc present, and I will make future appointments the last appointment of the day. Like the one I'm going to make after my scans. F*** that b****!!

There, I feel better after venting. I went back and read this and I'm like lolololol. Me so drama.

Thank you for listening. There's not many I could talk to about this who would understand.

Re: I am SOOOOOOO Pissed!

Posted: Wed May 17, 2017 7:57 pm
by Utwo
Are you from Canada?

Re: I am SOOOOOOO Pissed!

Posted: Wed May 17, 2017 8:04 pm
by jhocno197
Oh my goodness, I would be so freaking pissed, too!!!!

Re: I am SOOOOOOO Pissed!

Posted: Wed May 17, 2017 8:09 pm
by PainInTheAss
Utwo wrote:Are you from Canada?


I know, right! No, US. Arizona.

I've never had anything like this happen before in 4 years.

Re: I am SOOOOOOO Pissed!

Posted: Wed May 17, 2017 10:45 pm
by DebZ
I feel your pain! Went for chemo today. Lots of premeds make me loopy. Toward end of visit nurse is telling me I should be ready to leave in a little, but the timing didn't feel right. When I questioned her about Avastin, sure enough, she forgot to give me it to me. FORGOT!! It had been ordered thank God, but really?! The Benadryl makes me completely stoned so sometimes I'm asleep or not paying attention. Never having that nurse again! Hope you get your scans quickly. We have enough going on ... don't need additional crap.

Re: I am SOOOOOOO Pissed!

Posted: Wed May 17, 2017 11:03 pm
by [Ana & Alex]
As a fellow colleagues I won't talk bad about any specific situation with doctors or nurses. But I will say this.

Please PLEASE! Know your shit!
I know it is not easy, when you are not from the medical field to understand what it is right or best for you. But do research and advocate for yourself. You can be nice but you can request the best care, the best appointment, the best scan available.

And stay ATTENTIVE.
People make mistakes. People are tired. People are demotivated. Are there are also people for whom your are only a number to whom they perform a service.

I'm a perfectionist and there are mistakes that I will allow to happen, but if you think anything jeopardises your life - you step in like a leopard! And let them know what you are expecting and that you know what it is standard of care.

Eyes open!

Love,
Ana

Re: I am SOOOOOOO Pissed!

Posted: Wed May 17, 2017 11:21 pm
by [Ana & Alex]
Just wanted to add: if you have to wait a long time to check your liver you can try and get an ultrasound from a specialist.

Much cheaper and the good ones will tell you on the fly if you have to worry and pursue swiftness or not.

Re: I am SOOOOOOO Pissed!

Posted: Thu May 18, 2017 1:43 am
by turtle
Glad you followed up!

Re: I am SOOOOOOO Pissed!

Posted: Thu May 18, 2017 2:41 am
by Hannah Faulkner
I can relate to your pain with chemo, one thing is they only tell us what make sense. so its better to do research to ask right question at the moment. Hope your scan shows positive signs

Re: I am SOOOOOOO Pissed!

Posted: Thu May 18, 2017 5:20 pm
by Lee
I am so sorry this happened to you, it is inexcusable :evil: .

I have not read all the post, BUTT I truly believe this incident should be reported. This type of incident could effect a life/death type situation.

Good luck, you have every right to be pissed!

Lee

Re: I am SOOOOOOO Pissed!

Posted: Fri May 19, 2017 3:12 pm
by Utwo
DebZ wrote:When I questioned her about Avastin, sure enough, she forgot to give me it to me.
Are you from Canada?