Summary: My onc's assistant never scheduled my early scans after I complained about suspicious pain to my Onc in February...never mind my regular scans that I should have had in April, I asked for early scans. I just found out that my next scans are set up for October!!!!
I am so pissed at this b****!
First off, I had my last scans at the end of October last year and they were all clear. Then at the end of December, I started have a weird pressure/discomfort in the liver/gall bladder area. After searching the forum and discovering the liver doesn't have nerve endings and most liver pain is felt in the advanced stages, I figured it was unlikely to be mets. It would come and go and never really felt like pain. I thought maybe it was my gall bladder.
After having this continue off and on in January, I decided to see my Onc early, so set up an appt for February. The office was extremely busy that day. When they are busy, my Onc and his assistant will tag team, with her coming in first and going over labs, etc. I didn't say anything to her... because she isn't my doctor!! Sorry, but I don't want to talk to the assistant, about anything!
He came in and seemed tired, rushed and in a hurry. It was very unusual. It was like cancer had gone on sale and their center had an unexpected rush. I mentioned my pain and after poking around, he said that we will do a PET and a bone scan, but it's unlikely it's liver mets or I would be losing weight and be really sick. If the PET is denied, we will do a CT and MRI. This PET denial process with an appeal can take a month, so I was probably not going to get scanned until April anyway. Oh well.
He leaves, and the assistant tells me that they will call me with the results, and I don't need to come back in for another appointment. WTF? It was like she was trying to free up his time or something. I didn't say anything, but thought I would just make an appointment anyway. F*** her.
So, I waited a month and was told my CT was pending. I thought that meant the PET and bone scan had been denied. I waited another week or two, still pending. Hmmm. Every time I call, still pending.
So now it's May. I explain my problem to someone, and they put me through to the head of test scheduling. She informs me that there was no PET or bone scan ever requested and that this CT was actually scheduled for October. So that b**** forgot to submit the request!!! Oh my god, really? Really, really, really? I know they were crazy busy that day, but really? Wow, wow, wow.
I get so upset and start crying. She apologizes and said they implemented a new appointment system and there were some "kinks." Yeah, I'll say.
All I could think is, "If I die because of that b****..."
I decide that I will be no more Mrs. Nice Guy. I will refuse to talk to the assistant without my Onc present, and I will make future appointments the last appointment of the day. Like the one I'm going to make after my scans. F*** that b****!!
There, I feel better after venting. I went back and read this and I'm like lolololol. Me so drama.
Thank you for listening. There's not many I could talk to about this who would understand.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation