Opdivo- here we go!

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dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Opdivo- here we go!

Postby dmondgirl » Wed May 17, 2017 6:32 pm

My fiancé started his first treatment with Opdivo yesterday! I provided a copy of all the information I have gathered from here and colontown fb page gave him a copy so that he knows I'm on top of my finance's health and I'm well informed( not an expert but I am trying everyday to become more knowledgeable). We love our oncologist so we trust his judgement .... right now he wants to try opdivo by itself to see how things go (he has confidence it will work) .... I will get a copy of his foundation test to see all the mutants and like that also keep an eye of future trials and treatments combos ..

We doing Opdivo because after the 4 treatment of erbitux with folfiri there was no shrinkage but everything was stable so immunotherapy was the next big step his oncologist had on his list.

Going to try and put my fiancé info in my signature:)
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

Steph20021
Posts: 492
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Opdivo- here we go!

Postby Steph20021 » Wed May 17, 2017 6:40 pm

Wishing your fiancé all the success with his trial!
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Currently stable suce Aug/16- on folfiri

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: Opdivo- here we go!

Postby dmondgirl » Wed May 17, 2017 7:35 pm

Steph20021 wrote:Wishing your fiancé all the success with his trial!


Thank you for your wishes :D
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Opdivo- here we go!

Postby Maia » Wed May 17, 2017 7:55 pm

That is so good to know. Eliz, are the doctors planning to have him nivolumab monotherapy, or keep a combination with chemo?

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: Opdivo- here we go!

Postby dmondgirl » Thu May 18, 2017 2:25 pm

Maia wrote:That is so good to know. Eliz, are the doctors planning to have him nivolumab monotherapy, or keep a combination with chemo?


As of now just nivolumab by itself..... Praying that this tratment will work its magic :D
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: Opdivo- here we go!

Postby Lee » Thu May 18, 2017 3:45 pm

All the best with your fiance. BeansMama has had great success with Keytruda. I believe they are the same. She had gone from "not a candidate for surgery" to "surgery in her near future". Larry's getting his eviction notice.

Hope it is as successful for your fiance.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: Opdivo- here we go!

Postby dmondgirl » Fri May 19, 2017 12:55 pm

Lee wrote:All the best with your fiance. BeansMama has had great success with Keytruda. I believe they are the same. She had gone from "not a candidate for surgery" to "surgery in her near future". Larry's getting his eviction notice.

Hope it is as successful for your fiance.

Lee


Thank you Lee,

Yes i've read her post and i am so happy to read that she is doing great.
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable


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