NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

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DK37
Posts: 506
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

Postby DK37 » Wed May 17, 2017 8:49 am

BIG NEWS ANNOUNCEMENT!

I'm excited to announce a new curated Stage IV MSS-CRC clinical trial finder tool that I have developed with the help of Maia from here in Colon Talk, Fight Colorectal Cancer and Flatiron Health! As always, I advocate patients using multiple tools to try to find clinical trials and I am excited to bring my fellow patients "another tool in the toolbox" for them to find potential trials to discuss with their medical teams!

Please check it out - it has been a labor of love for me to work on this project. I never imagined that my personal "trials to watch" spreadsheet I used to post to various CRC support groups would eventually be converted to such an amazing professional-quality resource for fellow patients to use. I'm biased :) but I think it is very user friendly and does an especially good job of finding potential immunotherapy trial options which are sometimes hard to find!

Please check it out and let me know in the comments what you think! It is meant to be "patient powered" so ideas and constructive criticism welcome!!

To Life!
-DK37!
Links:
Trial finder: http://trialfinder.fightcrc.org/
My personal blog on the trial finder: https://adventuresinlivingterminallyopt ... al-finder/
Fight CRC's Press Release: https://fightcolorectalcancer.org/blog/ ... -released/
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://colorectalmsstrials.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

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CRguy
Posts: 9166
Joined: Sun Feb 10, 2008 6:00 pm

Re: NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

Postby CRguy » Wed May 17, 2017 10:33 am

In addition to sending you MEGA CHEERS ! ....
I have linked this new information into our Clinical Trials Sticky
A DK37 CURATED MSS-CRC CLINICAL TRIAL FINDER! >> UPDATED

Best wishes buddy
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
DK37
Posts: 506
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Re: NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

Postby DK37 » Wed May 17, 2017 3:31 pm

CRguy wrote:In addition to sending you MEGA CHEERS ! ....
I have linked this new information into our Clinical Trials Sticky
A DK37 CURATED MSS-CRC CLINICAL TRIAL FINDER! >> UPDATED

Best wishes buddy
CRguy



Thank you for the sticky CR! Awesome!! I honestly think this trial finder has the potential to help many fellow patients navigate the very confusing world of clinical trials!

Cheers!
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://colorectalmsstrials.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

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Maia
Posts: 2414
Joined: Fri Aug 24, 2012 8:00 am

Re: NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

Postby Maia » Wed May 17, 2017 3:52 pm

DK37 wrote: I honestly think this trial finder has the potential to help many fellow patients navigate the very confusing world of clinical trials!


I agree with Tom, on this and on that it is a labor of love, for me, too. May it help many Stage IV patients to find better treatments, that bring durable responses or even a CURE :)

Stanfordmom
Posts: 611
Joined: Wed May 14, 2014 1:32 am

Re: NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

Postby Stanfordmom » Wed May 17, 2017 10:55 pm

Thank you so much, Tom and Cee Cee!

You two are the most wonderful and kindest people. Thank you for working so hard to help all of us!

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

Lee
Posts: 5076
Joined: Sun Apr 16, 2006 4:09 pm

Re: NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

Postby Lee » Thu May 18, 2017 11:04 am

Stanfordmom wrote:Thank you so much, Tom and Cee Cee!

You two are the most wonderful and kindest people. Thank you for working so hard to help all of us!

Sha


Agree. We are very fortunate to have both of your expertise on this forum. Thank you for all that you do.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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