My forum family

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My forum family

Postby exaussie » Tue May 16, 2017 3:32 pm

On Saturday night our daughter left to go to her senior prom. By 6pm she took her own life. Colon cancer took her brother and her depression went to hyper mode. She never spoke of her brother, and many other things.
We are shattered, cancer kills but depression is just as @deadly. Survivors, caretakers, loved ones are vulnerable to hopelessness. Get help, if you see someone withdraw then suddenly seem OK, anything like that please get them to go get help. We tried, she had gone to counseling. We tried to get her to admit it and go to a hospital but she knew we couldn't make her.
Gather your family and friends and tell them you love them.
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

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Re: My forum family

Postby CRguy » Tue May 16, 2017 3:38 pm

I have no words ......
I hold you in virtual love
and my heart goes out to you

Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Re: My forum family

Postby peanut_8 » Tue May 16, 2017 3:51 pm

so very sorry
female, diagnosed Jan 14, RC stage 2a, age 56
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Re: My forum family

Postby BeansMama » Tue May 16, 2017 3:58 pm

So very sorry, keeping you in my prayers.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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Re: My forum family

Postby muskokamike » Tue May 16, 2017 4:15 pm

Tragic events in your life. There are no words.

You will always find support here.

Stay strong and chin up.
53M Dx rc10/31/13
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR/pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
Sep/19 clear CT scan DISCHARGED!
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal

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Re: My forum family

Postby Willow.NZ » Tue May 16, 2017 4:21 pm

I am so deeply sorry for your loss, I truely cannot imagine the pain of what you have endured.
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.

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Re: My forum family

Postby GrouseMan » Tue May 16, 2017 5:19 pm

Very sorry for your loss. I am borderline depressive, maybe some what manic as well. Its been many years since I was heading towards that kind of black despair. Its been my wife that has kept it at bay all this many years. I've never been bad enough to require medication, and I am very reluctant to consider that as I depend too much on my mental faculties to have them dulled by medications. I can't comprehend how terrible it must be to loose your son and then your daughter!

Best wishes to you. Be strong and don't let despair get another toe hold on your family!

DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

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Re: My forum family

Postby Phuong » Tue May 16, 2017 5:39 pm

Absolutely no words. Just lots of love for you and your family.
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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Re: My forum family

Postby Stanfordmom » Tue May 16, 2017 5:40 pm

I am So So sorry for your loss. Praying for you and your family.

DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

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Joined: Fri Feb 06, 2009 10:07 am

Re: My forum family

Postby ams5796 » Tue May 16, 2017 5:41 pm

So very sorry. Love to you and your family.

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Joined: Mon May 11, 2015 9:33 pm

Re: My forum family

Postby jhocno197 » Tue May 16, 2017 6:56 pm

I know there are no helpful words, but I am so very sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Location: NZ

Re: My forum family

Postby NZJay » Tue May 16, 2017 7:46 pm

So incredibly sorry for your family's loss.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

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Re: My forum family

Postby pantufla » Tue May 16, 2017 7:54 pm

Oh no. Words are not enough. I'm so sorry. :cry:
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm.
June 2019: NED.

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Re: My forum family

Postby edinaman » Tue May 16, 2017 7:58 pm

I am so sorry. My thoughts are with you and your family.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

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Re: My forum family

Postby DebZ » Tue May 16, 2017 9:48 pm

I am so very sorry. I lost both parents this past year suddenly, and as hard as that's been, I can't imagine losing a child, much less two. Sending prayers for you and your family.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014-May 2015: Folfox
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switch to Folfox+Avastin
Jan-April 2018: dropped oxali; CEA rising
May 2018: back on Folfox+Avastin, add pulse steroid treatment to get platelet count up (continuously in 50s)

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