My forum family

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Re: My forum family

Postby kirac » Tue May 16, 2017 10:48 pm

My words are not enough... I'm so sorry.
Husband (Age 36) 1/13 Dx Stage 3B rectal cancer
3/13 Chemoradiation
6/13 Tumor removed, Temp ileo, 1/15 nodes
7/13 Chemo = Oxaliplatin, Xeloda
1/14 Reversal
7/14 NED, CEA 1.8
12/14 CLEAR CT scan! NED

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Posts: 1459
Joined: Tue Apr 12, 2011 10:10 pm

Re: My forum family

Postby horizon » Tue May 16, 2017 11:06 pm

I audibly gasped when I read this. I'm so incredibly sorry for you loss.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 6 years NED). Is this real life?

Posts: 615
Joined: Sun Sep 13, 2015 6:16 pm

Re: My forum family

Postby mariane » Tue May 16, 2017 11:14 pm

I am very, very sorry.
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: My forum family

Postby KElizabeth » Tue May 16, 2017 11:33 pm

I will never understand this universe.
I will never have words to describe how sorry I feel for the grief to have to endure.
My condolences.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

Posts: 278
Joined: Sun Jun 19, 2016 3:57 am

Re: My forum family

Postby Swirdfish » Tue May 16, 2017 11:50 pm

WoW. That really sucks. Why is life so unfair.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

Posts: 666
Joined: Sat Aug 17, 2013 5:46 pm

Re: My forum family

Postby stu » Wed May 17, 2017 1:35 am

Just utterly devastating.
Our precious children are struggling over here too. Six children in one high school made attempts to take their life. My son encouraged me to watch Thirteen Reasons Why. I don't have answers to how we can ease their pain .
I am so sad for her pain and your,
Sending my love,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

Posts: 653
Joined: Fri Feb 10, 2006 7:04 pm

Re: My forum family

Postby Ron50 » Wed May 17, 2017 2:32 am

I found it hard to reply, not that I didn't want to, I just don't have the words, Hugs ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: My forum family

Postby JudeD59 » Wed May 17, 2017 2:54 am

As a writer, I am seldom at a loss for words, but I clicked reply and then just stared at the empty white space for a long time, What can anyone say that would ease the pain of such a devastating tragedy? All I can say is that I'm so, so sorry for all that you've had to suffer and I hope you know that your "forum family" is always here if you need to talk, rant, ask for prayers, or seek comfort in any way.

As a mother, I can't comprehend the pain you've endured. It breaks my heart just thinking about it.

I'm so sorry.

56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

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Posts: 344
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: My forum family

Postby LPL » Wed May 17, 2017 6:57 am

Oh exaussie :cry:
Why must such a sad thing happen to you? Again ..
I wish I could do something to ease your pain.
Thank You for the warning:
"If you see someone withdraw then suddenly seems OK, anything like that please get them to go get help."
That was exactly how they described my daughter's classmate the last days before she took her own life. Someone explained it to me that the change to "suddenly seems OK" is because they have made the decision ..
I am SO Sorry for your loss !
Sending Virtual Love & Hugs
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Posts: 231
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY

Re: My forum family

Postby fumaros » Wed May 17, 2017 7:35 am

I feel terrible for you. I am truly sorry for your loss. Words can't...
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

[Ana & Alex]
Posts: 93
Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: My forum family

Postby [Ana & Alex] » Wed May 17, 2017 8:38 am

I too, don't have any words. I'm so sorry....
Everything is so cruel and random it is hard not to wonder about the meaning of this life. Don't blame your daughter... don't blame yourself too, ever.

You are in my thoughts,
Dx @ 29 yo. Mum (2 y.o.) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d
12/2017: Aspirin, Vit. D3, Curcumin, Multivitamin.

B in Canada
Posts: 19
Joined: Sun Dec 07, 2014 12:29 pm

Re: My forum family

Postby B in Canada » Wed May 17, 2017 11:10 am

My sincerest condolences to you, your family, your friends & your daughter's friends. So very sad.
Positive FIT test Spring 2013(intermittent blood=of course thought it was hemorrhoid) & finally got appt with colo-rectal surgeon Dec.2013 & then colonoscopy Aug. 2014
Sigmoid resection (laparoscopic) Nov. 2014 T3N0M0=colon 2A Female 53 yrs. old
Choice of to take Capecitabine(Xeloda) or not: did 2 rounds and then had to quit due to many side-effects(still have auto-immune/drug-induced arthritis problems)
Colonoscopy Fall 2015(few polyps), Jan 2017(couple polyps); all scans/CEA/monitoring good :D

Posts: 139
Joined: Fri Sep 28, 2007 4:40 pm
Location: central Texas

Re: My forum family

Postby texazgal » Wed May 17, 2017 12:24 pm

I'm so sorry for your loss! My family has been wounded by suicide, as well. My 16 yo niece and 36 yo sister both took their lives with a gun about 5 years apart. This was in '93 and '98 and we still grieve for them. I hope you can get thru this painful time. Blessings....
DX rectal cancer Aug 04
Surgery Sept 04, perm ostomy, "BarbieButt" Sept 23, 04.
Dad passed '93 CC
Gdad cc '68, uncle cc '69 too much CC in fam
DD 42 yo/w/2 polyps removed

Posts: 1565
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: My forum family

Postby janklo » Wed May 17, 2017 12:26 pm

I am so sorry. She must have been in a lot of pain. Praying for understanding for your family.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

Posts: 674
Joined: Sun Aug 17, 2014 11:19 am

Re: My forum family

Postby canadiandaughter » Wed May 17, 2017 6:19 pm

I am so very, very sorry to read of this tragic news. My daughter attempted suicide 3 years ago and still deals with the anxiety and depression that took her to that dark place. I cannot begin to imagine what you are going through, but thank you so much for sharing with all of us while you are hurting in the worst possible way any parent can ever imagine. Hopefully your words here will help someone else so they do not have to endure what you are dealing with. I know since my fathers death in January, my daughter has had a time where she slipped back into her dark place but thankfully we were able to help her through it this time. It never goes away, it is always there. All we can do is try to help as best we can with counseling etc, but as you and I both know, that doesn't always work. My daughter was released from the care of her psychologist shortly before her attempt. She did a very good job at convincing her that she was ok and did not need help anymore. If it was not for my daughters roommates, we would not have been so lucky.
I pray for strength for your family that you can somehow find a way to help each other. Sending hugs to you and your family.
Take care of one another!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

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