My forum family

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exaussie
Posts: 607
Joined: Sun Jan 19, 2014 1:19 am
Location: Silverton OR
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My forum family

Postby exaussie » Tue May 16, 2017 3:32 pm

On Saturday night our daughter left to go to her senior prom. By 6pm she took her own life. Colon cancer took her brother and her depression went to hyper mode. She never spoke of her brother, and many other things.
We are shattered, cancer kills but depression is just as @deadly. Survivors, caretakers, loved ones are vulnerable to hopelessness. Get help, if you see someone withdraw then suddenly seem OK, anything like that please get them to go get help. We tried, she had gone to counseling. We tried to get her to admit it and go to a hospital but she knew we couldn't make her.
Gather your family and friends and tell them you love them.
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

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CRguy
Posts: 9087
Joined: Sun Feb 10, 2008 6:00 pm

Re: My forum family

Postby CRguy » Tue May 16, 2017 3:38 pm

I have no words ......
I hold you in virtual love
and my heart goes out to you

CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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peanut_8
Posts: 2077
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: My forum family

Postby peanut_8 » Tue May 16, 2017 3:51 pm

so very sorry
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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BeansMama
Posts: 929
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: My forum family

Postby BeansMama » Tue May 16, 2017 3:58 pm

So very sorry, keeping you in my prayers.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

muskokamike
Posts: 179
Joined: Tue Feb 25, 2014 4:38 pm

Re: My forum family

Postby muskokamike » Tue May 16, 2017 4:15 pm

Tragic events in your life. There are no words.

You will always find support here.

Stay strong and chin up.
53M Dx rc10/31/13
and a huge WTF?....then
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR - pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5
2.2 Feb 17
0-4 normal

Willow.NZ
Posts: 176
Joined: Sun Mar 08, 2015 3:05 am

Re: My forum family

Postby Willow.NZ » Tue May 16, 2017 4:21 pm

I am so deeply sorry for your loss, I truely cannot imagine the pain of what you have endured.
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.

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GrouseMan
Posts: 715
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: My forum family

Postby GrouseMan » Tue May 16, 2017 5:19 pm

Very sorry for your loss. I am borderline depressive, maybe some what manic as well. Its been many years since I was heading towards that kind of black despair. Its been my wife that has kept it at bay all this many years. I've never been bad enough to require medication, and I am very reluctant to consider that as I depend too much on my mental faculties to have them dulled by medications. I can't comprehend how terrible it must be to loose your son and then your daughter!

Best wishes to you. Be strong and don't let despair get another toe hold on your family!

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

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Phuong
Posts: 1430
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: My forum family

Postby Phuong » Tue May 16, 2017 5:39 pm

Absolutely no words. Just lots of love for you and your family.
Phuong
http://sonofamotherlessgoat.net/
Stage III Rectal (T3 N1 M0)
6/07 dx
Chemorad
11/07 Colon resection
Folfox
11/08 liver resection
Folfiri
3/09 lung resection
5/10 PVE
8/10 Hepatectomy (2nd liver met)
12/12 Liver met
1/13 SRS
NED :)

Stanfordmom
Posts: 608
Joined: Wed May 14, 2014 1:32 am

Re: My forum family

Postby Stanfordmom » Tue May 16, 2017 5:40 pm

I am So So sorry for your loss. Praying for you and your family.

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

ams5796
Posts: 2239
Joined: Fri Feb 06, 2009 10:07 am

Re: My forum family

Postby ams5796 » Tue May 16, 2017 5:41 pm

So very sorry. Love to you and your family.



Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found spine met that had been treated
7/17 breast biopsy

jhocno197
Posts: 784
Joined: Mon May 11, 2015 9:33 pm

Re: My forum family

Postby jhocno197 » Tue May 16, 2017 6:56 pm

I know there are no helpful words, but I am so very sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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NZJay
Posts: 628
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: My forum family

Postby NZJay » Tue May 16, 2017 7:46 pm

So incredibly sorry for your family's loss.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0
Awaiting 3 year scan results.
NED since resection

pantufla
Posts: 110
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: My forum family

Postby pantufla » Tue May 16, 2017 7:54 pm

Oh no. Words are not enough. I'm so sorry. :cry:
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
Lynch negative.
10/3/16 CT scan clear.

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edinaman
Posts: 1088
Joined: Wed Oct 26, 2005 10:15 pm
Location: Minnesota

Re: My forum family

Postby edinaman » Tue May 16, 2017 7:58 pm

I am so sorry. My thoughts are with you and your family.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

DebZ
Posts: 61
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: My forum family

Postby DebZ » Tue May 16, 2017 9:48 pm

I am so very sorry. I lost both parents this past year suddenly, and as hard as that's been, I can't imagine losing a child, much less two. Sending prayers for you and your family.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014: Folfox 12 treatments (lots of reductions in oxaliplatin and ceased before end)
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and complete hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switching to Folfox+Avastin


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