Ovarian Cyst Question

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Fluff Bottom
Posts: 44
Joined: Fri Oct 23, 2015 8:13 am

Ovarian Cyst Question

Postby Fluff Bottom » Tue May 16, 2017 1:34 pm

Hello everyone, I had my follow up CT scan and got the results today. All clear except for the ovarian cyst that grew from 1cm to 4.9cm. I'm not overly concerned and I realize this cyst isn't huge but it does explain a few issues I've been having.

Anyway, I was going to ignore it until my normal ob/gyn appointment in September but I'd thought I'd ask to see what you ladies thought?
10/26/15-Colonoscopy-Mass in Sigmoid Colon
10/28/15-CT Scan
10/30/15-Surgeon Consult-Mass is adenocarcinoma with mucinous type components.
Lynch Negative
11/17/15-Partial Sigmoidectomy
Stage IIIb-T3N1c, 3/13 nodes, High Grade-Poorly Diff to Undiff
12/16/15-Port installed, began FOLFOX
CEA .8 before surgery and after Round 1 of FOLFOX
2/18/16 CEA 1.9
Finished 12 rounds of FOLFOX 5/22/16

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: Ovarian Cyst Question

Postby mariane » Tue May 16, 2017 11:05 pm

I am constantly dealing with ovarian cysts because of endometriosis. I have endo since 2004.
The question is if you have had any ovarian cysts in the past. Pelvic ultrasound may give some more information about it. Solid ovarian tumors are usually cancerous. Cysts - you never know 100% before resection.
I underwent ovarian resection over a year ago due to cysts at MSKCC. Since a piece of my left ovary stayed I am still dealing with cysts formation. I have been on Lupron since September. I am switching to IUD - we will see...
I would be very cautious with the cyst. What your doctor says? Did he/she ordered ultrasound?? Ultrasound can tell whether their is clear fluid, it is haemorrhagic, solid etc
In what time period the cysts grew from 1cm to 4.9??
I had growths like that - some even faster from 0cm to 7cm due to endometriosis, more than once. Still my oncologist called my gynecologist surgeon and wanted the cysts out. After my first surgery and scar tissue I did not have second resection. My cysts disappeared on Lupron. However my oncologist still monitors my pelvis very vigilantly. Ovarian and peritoneal mets usually show up as early recurrence.
All the best for you!
Last edited by mariane on Wed May 17, 2017 7:17 am, edited 1 time in total.
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

Fluff Bottom
Posts: 44
Joined: Fri Oct 23, 2015 8:13 am

Re: Ovarian Cyst Question

Postby Fluff Bottom » Wed May 17, 2017 7:05 am

Hi Marianne, the cyst grew sometime in the past year. I've had issues with cysts for about 12 years but they've always been tiny and taking low dose birth control has kept them from causing me too much trouble. It's only been the past few months that I've had any real pain and I started noticing it was hard to empty my bladder.

My oncologist didn't say much, said he didn't think it was CC related and they would forward the info to my ob/gyn.

I guess I need to call her office at least and see if they think I should come in.

Thanks so much for sharing your info!
10/26/15-Colonoscopy-Mass in Sigmoid Colon
10/28/15-CT Scan
10/30/15-Surgeon Consult-Mass is adenocarcinoma with mucinous type components.
Lynch Negative
11/17/15-Partial Sigmoidectomy
Stage IIIb-T3N1c, 3/13 nodes, High Grade-Poorly Diff to Undiff
12/16/15-Port installed, began FOLFOX
CEA .8 before surgery and after Round 1 of FOLFOX
2/18/16 CEA 1.9
Finished 12 rounds of FOLFOX 5/22/16

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: Ovarian Cyst Question

Postby mariane » Wed May 17, 2017 7:22 am

If you had history of cysts formation than it is most likely benign.
If oncologist did not show any concern the cyst on the scan most likely had clear fluid or was haemorrhagic. However cysts like that could be mets as well...
I think you could ask gynecologist for ultrasound to learn more about the cyst.
My cysts were usually slightly painful. I always felt them. The pain was sometimes sharp, sometimes dull, sometimes radiating to the knee.... All sorts of pain. Since I have endometriosis the pain grew after each period.
Hopefully your cyst is benign. Good Luck!
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

mom_2_3
Posts: 358
Joined: Sat Nov 29, 2008 8:09 pm

Re: Ovarian Cyst Question

Postby mom_2_3 » Wed May 17, 2017 4:11 pm

FB,

I have had ovarian cysts practically every scan. They switch sides depending upon the month and a few that I've had lead my onc to order a trans-vaginal ultrasound. She says it's not because she's worried it's anything but that she knew I would worry regardless. The ultrasounds always have come back with no issues, just a natural occurrence for my body. For a while the pain would be absolutely excruciating for a day and my ob/gyn suggested birth control pills which my oncologist quickly said "no". So I manage the occasional pain with Tylenol.

Best wishes,
Amy
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
7.34 years NED as of 06/2016. Next scan June 2017.

Fluff Bottom
Posts: 44
Joined: Fri Oct 23, 2015 8:13 am

Re: Ovarian Cyst Question

Postby Fluff Bottom » Wed May 17, 2017 7:06 pm

Hi Amy, thanks for the info. I'm not too worried but I will let you guys know what my ob/gyn says.
10/26/15-Colonoscopy-Mass in Sigmoid Colon
10/28/15-CT Scan
10/30/15-Surgeon Consult-Mass is adenocarcinoma with mucinous type components.
Lynch Negative
11/17/15-Partial Sigmoidectomy
Stage IIIb-T3N1c, 3/13 nodes, High Grade-Poorly Diff to Undiff
12/16/15-Port installed, began FOLFOX
CEA .8 before surgery and after Round 1 of FOLFOX
2/18/16 CEA 1.9
Finished 12 rounds of FOLFOX 5/22/16

Coloncancerqueen
Posts: 24
Joined: Tue Aug 23, 2016 12:37 pm

Re: Ovarian Cyst Question

Postby Coloncancerqueen » Thu May 18, 2017 10:47 pm

Follow up with your on/gym. I had my colon cancer go to my ovary 6 months tha after I finished chemo and it grew quickly. My CEA had elevated, and it showed on a Pet scan. A biopsy confirmed that it was colon cancer. Since I had both ovaries removed, things are going well. Just be sure it's a cyst... that's all.
Dx 5-15
Right hemicolectomy 5-15
11 rounds of fol fox finished 11-15
6-16 elevated CEA 7.7
7-16 more elevation in CEA 13.1
Summer of 2016 2 ct scans, pet scan, MRI, ultrasound
8-12-16 Second opinion sought
8-16 biopsy revealed mets to ovary
9-16 both ovaries removed
10-16 CEA 2.6 clean scan NED
11-16 CEA 1.1, 1-16 CEA 1.5

Fluff Bottom
Posts: 44
Joined: Fri Oct 23, 2015 8:13 am

Re: Ovarian Cyst Question

Postby Fluff Bottom » Mon Oct 23, 2017 1:35 pm

Ok, so I finally go to my gyn and she sends me for an ultrasound. I call a few days later for the results and the nurse says "it's negative". I said negative for what? She says "everything is good". I said so the cyst is gone and she said yes. Today I go by to get a copy of the report. It says neither ovary was visualized in the exam. WHT?

Not sure if I should do something at this point or wait till May when I have another CT scan.

Any input is appreciated!
10/26/15-Colonoscopy-Mass in Sigmoid Colon
10/28/15-CT Scan
10/30/15-Surgeon Consult-Mass is adenocarcinoma with mucinous type components.
Lynch Negative
11/17/15-Partial Sigmoidectomy
Stage IIIb-T3N1c, 3/13 nodes, High Grade-Poorly Diff to Undiff
12/16/15-Port installed, began FOLFOX
CEA .8 before surgery and after Round 1 of FOLFOX
2/18/16 CEA 1.9
Finished 12 rounds of FOLFOX 5/22/16

Aqx99
Posts: 237
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Ovarian Cyst Question

Postby Aqx99 » Mon Oct 23, 2017 5:43 pm

Fluff Bottom wrote:Ok, so I finally go to my gyn and she sends me for an ultrasound. I call a few days later for the results and the nurse says "it's negative". I said negative for what? She says "everything is good". I said so the cyst is gone and she said yes. Today I go by to get a copy of the report. It says neither ovary was visualized in the exam. WHT?

Not sure if I should do something at this point or wait till May when I have another CT scan.

Any input is appreciated!


It concerns you enough to ask about it here, you should bring it up with your doctor. Point out that the ovaries were not visualized. I had to have my ovaries removed during my LAR because "they didn't look right." It turned out that I had precursor ovarian cancer. Keep at them until you get some answers.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
Diagnosed at age 39
2/21/17 Diagnosis
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR with temp loop ileostomy, ovaries and fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 Started CapeOx, 6 Cycles
7/24/17 Diagnosed with precursor ovarian cancer
9/6/17 CA 125 11.1 U/mL
1/18ish Reversal

menreeq
Posts: 40
Joined: Fri Jun 30, 2017 10:26 am

Re: Ovarian Cyst Question

Postby menreeq » Tue Oct 24, 2017 4:08 pm

Fluff Bottom wrote:Ok, so I finally go to my gyn and she sends me for an ultrasound. I call a few days later for the results and the nurse says "it's negative". I said negative for what? She says "everything is good". I said so the cyst is gone and she said yes. Today I go by to get a copy of the report. It says neither ovary was visualized in the exam. WHT?

Not sure if I should do something at this point or wait till May when I have another CT scan.

Any input is appreciated!



Did they do transabdominal, endovaginal or both? If only transabdominal, sometimes you just won't see ovaries. You should have an endovaginal exam. If ovaries are also not seen on that, they may just be located in a place that is hard to see. Ovarian cysts are very common in reproductive age women. And you have a history of cysts. Worrisome features would be solid tissue in the cyst, but this is hard to tell on CT. If they did an endovaginal US and couldn't see the ovaries, you can request MRI.
Stage IIA rectosigmoid CC (T3N0M0)
Dx 6/5/17 @age 41, mom to 5 & 2yo girls
Workup: c-scope, EUS, rectal MRI, CT C/A/P
AdenoCA 5.5cm, WHO Grade 2, 0/22 LN, no distant mets
CEA 1.9 (6/5/17)
No lymphovasc/perineural invasion, clear margins
MSI intact, OncotypeDx RS 7
Lap sig colectomy 6/23/17, no ileo/colostomy
Genetics counseling negative for mutations, 4 VUS
Started Xeloda monotherapy 8/13/17

DebZ
Posts: 73
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: Ovarian Cyst Question

Postby DebZ » Tue Oct 24, 2017 5:28 pm

My colon cancer went to my ovary so please just make sure you follow up until you know for sure if a cyst or not. When I complained to oncologist about pain in that area, he said rare for cancer to spread there and kinda blew it off. MRI showed large mass. He's not my oncologist any more.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014: Folfox 12 treatments (lots of reductions in oxaliplatin and ceased before end)
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and complete hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switching to Folfox+Avastin


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