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Joined: Wed May 14, 2014 1:32 am

Re: Blockage

Postby Stanfordmom » Mon Jun 05, 2017 5:53 pm

So so sorry for your loss. Praying for you and your family getting through this difficult time remembering all the sweet time you spent together!

DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Blockage

Postby Steph20021 » Mon Jun 05, 2017 8:00 pm

I am so sorry grouseman for your loss. Your wife was lucky to have you by her side, caregiving and advocating for her, and loving her all throughout. May she rest in peace now, free from all pain.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
11/18- Beacon trial-encorafenib & cetuximab

Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: Blockage

Postby canadiandaughter » Tue Jun 06, 2017 5:48 pm

I am so very sorry for you loss. You have been such a big help to so many on this board, I hope you are able to come back when you are ready and let the people here that care about you help and support you. Take care of yourself!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

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Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Blockage

Postby LeonW » Tue Jun 06, 2017 6:40 pm

Sorry to hear GM. I'd wished you so much better.
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

Posts: 488
Joined: Sun Sep 28, 2008 7:53 pm

Re: Blockage

Postby jdepp » Tue Jun 06, 2017 8:32 pm

Wishing you strong thoughts and great memories of Mrs. Grouseman.
Colon dx 08 @ 41 Poorly diff. 12+ liver mets, 19/28 LN
Colon rsx /14 x Folfox-Erbitux 08-09
PVE / Liver rsx 09
Lung & LN mets 10
Folfiri, Xeloda, Avastin 10-13
Xelox, Erbitux, UFUR, TS-1, Oxi, Lonsurf 14-16
Stivarga & TIL trial 16
Brain lesion, RO688 trial 18

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Blockage

Postby Bev G » Tue Jun 06, 2017 10:27 pm

Grouseman, I'm so sorry to hear of your loss. You have been an amazing and wise advocate for her, and have taught many of us a lot. I pray for the peaceful rest for your wife, and many warm memories to sustain you.

Warm hugs to you.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Posts: 246
Joined: Fri Jul 04, 2014 4:53 pm

Re: Blockage

Postby behconsult » Tue Jun 06, 2017 10:47 pm

Peace and God's Blessing to you and your family. This truly has been a long, painful, and difficult journey that begs more questions from the universe than provides answers. May you be surrounded in light. Your wife is free from the body that held her in pain. Prayers sent your way. Bob D
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT

Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Blockage

Postby JudeD59 » Wed Jun 07, 2017 1:09 am

So sad to hear of your wife's passing. Thank you for letting us know as we all were concerned. I'm sure that was a difficult post to write but I'm glad we can all be here for you to offer comfort and support in whatever way you need.

I'm so sorry for all you and your wife have suffered.

Keeping you in my prayers.

56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

Posts: 1441
Joined: Sat Aug 17, 2013 5:46 pm

Re: Blockage

Postby stu » Wed Jun 07, 2017 3:05 am

It pains me greatly to read this. Your love was written across each post. You were so kind to me with your wise counsel. I wish you peace and comfort.
Much love to you,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

michelle c
Posts: 1912
Joined: Wed Dec 02, 2009 3:58 am

Re: Blockage

Postby michelle c » Wed Jun 07, 2017 5:09 am

I am so very sorry for your loss. I don't come here much anymore but I do pop in from time to time to check on everyone. You were an amazing caregiver and wonderful advocate for your dear wife....for us all. She was very lucky to have you and she was amazing too....she was an inspiration to me. She is at peace now. Sending love, comfort and peace across the miles to you and all her loved ones xx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: Blockage

Postby WarriorSpouse » Wed Jun 07, 2017 9:41 pm

I am so sorry to read this Grouseman.
My thoughts are with you and your family, to include your Colon Talk family. I know many like myself have gained knowledge and wisdom of this dreadful disease and how to live with it through you and your wife's journey. Thank you for being open and sharing your experiences along the way.
We are all very sorry for your loss.
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Blockage

Postby lpas » Wed Jun 07, 2017 9:52 pm

Oh no, Grouseman--I'm so terribly sorry. It was always clear from your posts how very much she meant to you. Please take care of yourself. Your family is in my thoughts and prayers.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

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Posts: 316
Joined: Tue Jan 14, 2014 7:41 am
Location: Detroit

Re: Blockage

Postby Sleen » Fri Jun 09, 2017 4:01 pm

So very sorry, Grouseman. My deepest condolences to you and all who love and miss her.

my blog: Cancer Riot

NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]

Married 28 yrs. kids: 24, 21, 17, 12, 10
SE Michigan home schooler, unemployed mechanical engineer, and programmer.

Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: Blockage

Postby Lee » Fri Jun 09, 2017 6:01 pm


thinking of you,

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Posts: 1495
Joined: Thu Dec 20, 2012 9:53 pm
Facebook Username:
Location: San Diego, California

Re: Blockage

Postby WifeOfMike » Fri Jul 28, 2017 5:44 pm

My dearest Grouseman,
I am so very saddened in hearing of the passing of your beloved wife. I know she meant the World to you, as did my husband Mike to me. I hold you both in my heart & wish her God Speed to rest with the Angels above. (((HUGS)))). I want to Thank YOU once more for the friendship and sage advice you gave me regarding my loving hubby's situation. It meant the WORLD to both of us. Be well my dear friend. I will light my candles in her honor tonight.
Much Love- Vicki, WifeOfMike
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15

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