Blockage

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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Blockage

Postby jhocno197 » Sun May 28, 2017 6:16 pm

Grouseman, just letting you know I am thinking of & praying for you and your wife.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Lee
Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: Blockage

Postby Lee » Sun May 28, 2017 8:16 pm

(((Grouseman)))

Know that many people around the world carry you and your wife in their thoughts and prayers. Me included. I am a big believer in the power of the prayer, I know it helped me when I was going through treatment.

I pray your wife is not in pain and that both of you are surrounded by family, friends and love,

Always,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

JJ2212
Posts: 268
Joined: Mon Oct 14, 2013 3:54 pm
Location: Montréal, QC

Re: Blockage

Postby JJ2212 » Tue May 30, 2017 9:11 pm

Grouseman,

I hope you and your wife are doing well. Please keep us posted when you have the chance. Your silence is worrisome.

Take care,

Janie
Rectal cancer dx 04/13 @ 42, MSS, KRAS positive
T3N2M1 (1 lung met)
5 weeks xeloda+radiation finished 07/13
APR 9/13 (permanent colostomy), 27/31 nodes positive :-(
12 rounds of FOLFOX 04/14
Lung met growth 11/14
26 cycles Regorafenib (Stivarga) from 11/15 to 01/17
New lung met and chest/neck lymph nodes 01/17
1 cycle Folfiri

Lee
Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: Blockage

Postby Lee » Sat Jun 03, 2017 2:32 pm

Thinking of you both.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Blockage

Postby LPL » Sat Jun 03, 2017 4:29 pm

Thinking of you both.

Lee

Me too ...
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

MissMolly
Posts: 645
Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: Blockage

Postby MissMolly » Sat Jun 03, 2017 9:31 pm

Grouseman:
Lee wrote:Thinking of you both.

Lee


Count me in.

Sending you faith and prayer,
- Karen -
Dear friend to Bella Piazza, former Colon Club member (NWGirl).
I have a permanent ileostomy and offer advice on living with an ostomy - in loving remembrance of Bella
I am on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression. I live a simple life due to frail health.

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Blockage

Postby jhocno197 » Sat Jun 03, 2017 9:42 pm

Lee wrote:Thinking of you both.

Lee


I am also thinking of you both.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

User avatar
GrouseMan
Posts: 854
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: Blockage

Postby GrouseMan » Sun Jun 04, 2017 3:04 am

My wife passed away this morning at about 12:45 am. My father was sitting with her at the time. Just prior to me coming up to her bedroom to give her next round of oral morphine and Lorazepam to keep her comfortable as she lay wasting away. She left before the rain came in. I sat with her for a while with one of our dogs afterwards, while awaiting the Hospice nurse to come to my home and make the official record of her death. I just finished a beer and am for some reason strangely calm. Her sister was to visit her today, so I have put off calling the undertaker until her sister has had a chance to say good bye.

She deteriorated rather quickly since coming home from the hospital Friday before last, She and I were at that time under the impression, that despite the colostomy, and stomach tube she would have plenty of time and she would be able to still be active and work her dogs. No such thing as it was wishful thinking at best. I am really very tired now. I'll post more later.

Regards

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

Teddi
Posts: 241
Joined: Thu Jul 31, 2014 1:44 pm
Facebook Username: teddimcfarland

Re: Blockage

Postby Teddi » Sun Jun 04, 2017 3:51 am

I am so very sorry you didn't get more time with your beloved wife. Your love for her shone through in all of your posts. Cancer is so unfair.

Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

JJ2212
Posts: 268
Joined: Mon Oct 14, 2013 3:54 pm
Location: Montréal, QC

Re: Blockage

Postby JJ2212 » Sun Jun 04, 2017 6:47 am

I'm so sorry GrouseMan. Hugs.

Janie
Rectal cancer dx 04/13 @ 42, MSS, KRAS positive
T3N2M1 (1 lung met)
5 weeks xeloda+radiation finished 07/13
APR 9/13 (permanent colostomy), 27/31 nodes positive :-(
12 rounds of FOLFOX 04/14
Lung met growth 11/14
26 cycles Regorafenib (Stivarga) from 11/15 to 01/17
New lung met and chest/neck lymph nodes 01/17
1 cycle Folfiri

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Blockage

Postby LPL » Sun Jun 04, 2017 6:55 am

I am so sorry to hear this Sad news :(
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Blockage

Postby Pita » Sun Jun 04, 2017 7:17 am

So sorry to read this (((Grouseman))) I feel your pain. My condolences to you and your family and may your wife RIP. Hugs...


Linda
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Blockage

Postby jhocno197 » Sun Jun 04, 2017 8:10 am

Grouseman, I am so very sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

MissMolly
Posts: 645
Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: Blockage

Postby MissMolly » Sun Jun 04, 2017 9:04 am

Grouseman:
I feel a heaviness of grief and sadness reading your post. The world has lost a bright light in the passing of your dear wife.

I hope that you can find warmth and companionship in the company of your dogs, and in them find gentle memories of your wife and of your shared love.

Shalom,
- Karen -
Dear friend to Bella Piazza, former Colon Club member (NWGirl).
I have a permanent ileostomy and offer advice on living with an ostomy - in loving remembrance of Bella
I am on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression. I live a simple life due to frail health.

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: Blockage

Postby jortego128 » Sun Jun 04, 2017 9:28 am

I'm very sorry Grouseman. Ive been following your updates and it sounds like your wife had been suffering greatly in the past several weeks. She is no longer suffering. My deepest condolences....
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016


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