Side effects: fatigue, nausea, low blood counts - sometimes extremely, dangerously low. Lonsurf is a stabilizer, not really a shrinker of tumors, but there are several people who have been successful with it for a year +. Just please, please, please have blood counts checked regularly. Not just at day 15. And even if your counts are ok in the beginning, keep up with the checks, because it can change.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Lonsurf started 11/18/16