Lonsurf experience

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Posts: 65
Joined: Sun May 04, 2014 11:32 pm

Lonsurf experience

Postby Awreed » Fri May 12, 2017 9:57 pm

My doc wants me to start Lonsurf while I wait to do Y90 to my liver. Can you share success or failures and side effects?
Stage IV crc 5/11
Peritoneal spread-Cytoreductive Surgery 6/13
Liver resection-8/13
Chemo 10/13-3/14
NED- 5/14

Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Lonsurf experience

Postby jhocno197 » Sat May 13, 2017 10:14 am

Side effects: fatigue, nausea, low blood counts - sometimes extremely, dangerously low. Lonsurf is a stabilizer, not really a shrinker of tumors, but there are several people who have been successful with it for a year +. Just please, please, please have blood counts checked regularly. Not just at day 15. And even if your counts are ok in the beginning, keep up with the checks, because it can change.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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