Tdubz wrote:hey benben, I had forgotten my password so I haven’t been able to log in lol. Round 12 is on Monday and I can’t wait to be done! Oxy is down to 40% now and I’m hoping they just drop it all together for this last round. Hands and feet tingle all the time, finger tips are numb, I get shooting sensations that go up and down my arms and legs, and it’s getting difficult to write, lucky for me I mostly type at work. Neuropathy has been drastically worse with the previous treatment as most of these side effects just started then. Besides that, everything else has been getting better. I haven’t had many chest pains lately, but that’s because I mainly lay in bed during chemo week. If I get up and try to be active, they will start again. Luckily I am fine on off treatment weeks. Just have an elevated hr, but no pains during that week. All other symptoms have been mild these past few rounds. Fatigue has stayed about the same. I played laser tag and min golf with the kids yesterday and that wore me out lol, and I’m going to test my energy level again today by going to a college football game. I’ll have a scan at the end of October, which will be my first scan since starting chemo, so that will be a nerve racking wait but hopefully that will go by fast because I’ll be returning to work full time again.
How’s everything been going on your end? Did you stop at 8 or keep going?
Hey, glad to hear from you. Also glad to hear you're still enjoying life with your kids. Laser tag can be quite fun with little ones
Sounds like you did pretty well with OXI. My ONC pulled me off OXI after 7 treatments as he was concerned that neuropathy might be permanent if I continued.
Also looked like a zombie going into his clinic and was always wearing a mask and scaring some of his new patients. LOL. But I also suffered Neutropenia and then Thrombocytopenia.
Neutropenia came on after session 1, Thrombocytopenia came on after injectsion of growth factors granix, then zarxio. So I had a list of complications and the removal of OXI diminished the neuropathy a lot and the White blood cells came up. RBC was still just slightly below normal last session, but platelets were back in the normal range - even though slightly morphed in size.
I can tell you once OXI is done the side effects start to fade after a couple weeks, at least they did for me. The 5FU still causes tingling in hands and feet, but I have almost zero cold sensitivity (just sometimes with my feet if AC is blowing on them directly. Got one in the kitchen that does that.) I am still chugging along with 5FU and leucovorin and treatment 11 for me is Tuesday.
I feel loads better off the OXI. Energy is up and just the overall general feeling of well being has increased. Not to mention I'm transforming from zombie looking to more and more like my old self.
Enjoy that college football game. Who you watching?
May your last treatment see you well and on your way to recovery and NED!