Latest news on Larry...

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Latest news on Larry...

Postby BeansMama » Sun May 07, 2017 12:15 pm

SarahS wrote:Newish here, but have been following your journey among others, you are the same age as my husband

Just wanted to say that is incredible news, I am so glad you have found something that works,

All the very best for you, I know there will be a day when you'll write and tell us here that Larry has been removed :D


Thank you, I have not been on in a while, life has had me running here there and everywhere, all thanks to Keytruda I am able to be as active as I am now.

I am not familiar with your story and I apologize, but I will add you and your husband to my prayer list.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Latest news on Larry...

Postby BeansMama » Sun May 07, 2017 12:18 pm

Lee wrote:
CRguy wrote:BIT CHIN '
sista' you made my week

Larry leavin' = don't let the door knob hit yo' skanky ass while you be leavin' Larry ....
Image

WORD !


ditto. Beans I am so HAPPY for you. You have worked so hard to get to this point. To be seeing a surgeon. AWESOME. Yes we can be little warped around here. How many people are happy about surgery :shock: Keep us posted on what say.

All the best to you ALWAYS.

Lee


Thanks Lee!! You are right, it does seem to be odd to be this excited about surgery. If you stop and think about it I am cheering about being put on heart lung bypass....

The best to you too! (hugs).
Beans
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Latest news on Larry...

Postby stu » Sun May 07, 2017 1:07 pm

Fantastic news. Its crazy the excitement that getting to surgery brings.
I will share this good news with my mum.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Latest news on Larry...

Postby DarknessEmbraced » Sun May 07, 2017 2:20 pm

I'm sorry you went through cellulitis but am glad it cleared up!*hugs* I'm also glad that you enjoyed your Vegas trip and that Larry continues to shrink!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Latest news on Larry...

Postby LPL » Sun May 07, 2017 5:21 pm

Oh BeansMama - such wonderful News :D
Well not about the cellulitis, that sounded not fun, but about shrinking CEA & Larry soon gone!
Totally understand that you are a fan of Keytruda.
I hope you will like your surgeon.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

User avatar
HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Latest news on Larry...

Postby HopeForJesse » Sun May 07, 2017 6:15 pm

So glad to hear such wonderful news for you. :D
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Latest news on Larry...

Postby CRguy » Sun May 07, 2017 8:52 pm

BeansMama wrote:Thanks for all the support CR. I have always been able to count on you for encouragement.

MEGA HARMONY sista'

We stand with you, beside you and behind you
BUTT YOU take on the task and do the real work !

If anything I can say or do helps you along the way ...
WORD !

we gotchur' back my friend

ALWAYS on the Journey with you
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Latest news on Larry...

Postby mariane » Sun May 07, 2017 10:12 pm

Congratulations!!! I am so very happy!!! These are the fantastic news! All the best for you! :):)
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

Lovenothate
Posts: 38
Joined: Tue Aug 16, 2016 3:13 am
Facebook Username: Emily.guzman

Re: Latest news on Larry...

Postby Lovenothate » Mon May 08, 2017 6:37 am

Hey Vegas is my hometown! Congrats on the progress! Its about time to kick Larry out to the curb! I hope things keep getting better and better :)))))
daughter to DM dx Stage IV CRC @47 July 2016
total hysterectomy b/c ovarian mets abscites 6/16
Colostomy
Folfox 7/16
Lung spots 2mm each 9/16
Xeloda & Avastin 1/17
Shrinkage to lungs spots! 4/17
Break from Avastin/ Xeloda continued 7/17
Omentum mets/ lungs mets stable(possibly not malignant)
Folfiri 8/17
1 lung spot all along-clear abdomen scans chemo break until 4/4/17

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Latest news on Larry...

Postby juliej » Tue May 09, 2017 7:11 pm

Larry is so out of here!!! :evil: Evicted, kicked to the curb, and run over by a bus!

Sending prayers your way, as always!
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: Latest news on Larry...

Postby TXLiz » Wed May 10, 2017 10:35 pm

So excited for you! Fabulous!

See ya later, Larry. On second thought: NO WE WON'T. Beans will be in Vegas and you will be gone to wherever things like you go. Hope you enjoyed your trip, because next time Beans isn't taking your deadbeat @ss!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Need2talk
Posts: 32
Joined: Sun Oct 02, 2016 7:24 pm
Facebook Username: Janicejones

Re: Latest news on Larry...

Postby Need2talk » Mon May 29, 2017 10:02 pm

Sorry for the infections but so happy to hear you are doing well!!! Thinking of you often!

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Latest news on Larry...

Postby Steph20021 » Tue May 30, 2017 2:05 am

Beans, I've never been to vegas but I've been told it's like Disneyland for adults! Glad you had such a great trip. Looking forward to your updates re surgery.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 145 guests