Latest news on Larry...

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Latest news on Larry...

Postby BeansMama » Sat May 06, 2017 7:33 pm

Hi everyone!! I know I haven't been on in a really long time, things have been crazy. Was hospitalized with cellulitis all over my abdomen, was pretty worrisome because it was mainly in all of my surgical scars. Did IV antibiotics and a round of oral antibiotics, it cleared up pretty easily. Thankfully I called the doc and got in as soon as it showed up so we got it pretty early. I was so glad we did because I had a trip to Vegas scheduled and I was supposed to leave two days after I was admitted.

Made my trip and it was amazing! Didn't get to see everything I wanted to see so of course I have to go back :D

Now on to the Larry update:

They did a CT scan while I was in the hospital and Larry continues to shrink. My CEA has gone from 345 at the end of January to 7.3 according to the test on Tuesday.

I now have an appointment with the surgeon on the 16th! Hoping we get the surgery ball rolling so Larry can be served his eviction notice!!!

I am so thankful for Keytruda, it is the only treatment that has made any real progress in my fight against this wretched disease.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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CRguy
Posts: 10285
Joined: Sun Feb 10, 2008 6:00 pm

Re: Latest news on Larry...

Postby CRguy » Sat May 06, 2017 7:59 pm

BIT CHIN '
sista' you made my week

Larry leavin' = don't let the door knob hit yo' skanky ass while you be leavin' Larry ....
Image

time for the squirrel !
Image


WORD !
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Latest news on Larry...

Postby ams5796 » Sat May 06, 2017 9:19 pm

Wow, that's great news on Larry. Really happy to read this!





Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Latest news on Larry...

Postby jhocno197 » Sat May 06, 2017 9:47 pm

Fantastic!!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

SarahS
Posts: 49
Joined: Sat Mar 11, 2017 12:44 pm

Re: Latest news on Larry...

Postby SarahS » Sat May 06, 2017 10:14 pm

Newish here, but have been following your journey among others, you are the same age as my husband

Just wanted to say that is incredible news, I am so glad you have found something that works,

All the very best for you, I know there will be a day when you'll write and tell us here that Larry has been removed :D
Wife and caregiver to husband diagnosed with stage 4 colon cancer Nov 2016
Emergency surgery to remove blockage in cecum 12/03/2016
Stage 4 colon cancer. Mets to liver, peritoneum, possibly lungs
K-Ras G12C MSS
01/05/2017 Begin Folfox 6 plus Avastin
CEA pre surgery 114, post surgery 70, 02/2017- 35 03/2017- 23 04/2017- 12

Lee
Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: Latest news on Larry...

Postby Lee » Sat May 06, 2017 10:19 pm

CRguy wrote:BIT CHIN '
sista' you made my week

Larry leavin' = don't let the door knob hit yo' skanky ass while you be leavin' Larry ....
Image

WORD !


ditto. Beans I am so HAPPY for you. You have worked so hard to get to this point. To be seeing a surgeon. AWESOME. Yes we can be little warped around here. How many people are happy about surgery :shock: Keep us posted on what say.

All the best to you ALWAYS.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Stewsbetty
Posts: 170
Joined: Thu Jul 14, 2016 7:08 am

Re: Latest news on Larry...

Postby Stewsbetty » Sat May 06, 2017 11:13 pm

So glad to hear this! I was just searching for you last night since it had been awhile since i has seen you on here.
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!

LMighty
Posts: 98
Joined: Sun Aug 28, 2016 6:16 am
Location: Hong Kong

Re: Latest news on Larry...

Postby LMighty » Sun May 07, 2017 2:41 am

GREAT NEWS

Die Larry Die!
Supporter to my mom (64 yr); KRAS wild type; MSS

2012: DX Stage I, rectal cancer; resection and colostomy
5/16: DX Stage III, mets found; right groin lymph node and soft tissue
5-6/16: Radiation + Xeloda
7/16: DX Stage IV, pleural effusion; cancer cells found in fluid
7-12/16: Xelox + Avastin X 6
1/17: Clean PET scan, NED
2/17: Pleural effusion; recurrence
4/17: Iri + Erb X 3
5/17: Ascites; Chemo failed
6/17: Keytruda X 1
7/17: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib)
9/17: At peace

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Latest news on Larry...

Postby fumaros » Sun May 07, 2017 5:30 am

Oh congrats BeansMama, you are such a greater fighter, and now Larry is getting his butt kicked.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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Sophy
Posts: 252
Joined: Fri May 27, 2011 2:46 am
Location: New Zealand

Re: Latest news on Larry...

Postby Sophy » Sun May 07, 2017 6:40 am

Well done, that is good news, sometimes hard work does pay out...

Fingers and toes crossed that a curative surgery will be on the cards.

Thinking of you
Sophy
dx T3N1M0 Feb 11 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
June 2020 CT shows nodule, bronchoscopy shows scar tissue, still NED
Dec 2020 stopping Chemo

CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Re: Latest news on Larry...

Postby CLD » Sun May 07, 2017 7:33 am

Excellent news! Soooo happy for you!
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: Latest news on Larry...

Postby WarriorSpouse » Sun May 07, 2017 7:39 am

Sweet! Glad things are going well. I hope Vegas gave you a couple of free drinks and dollars during your visit there:)
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: Latest news on Larry...

Postby jortego128 » Sun May 07, 2017 9:31 am

Im so glad for you. To hell with FOLFIRINOX!! :D
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Latest news on Larry...

Postby mypinkheaven » Sun May 07, 2017 11:19 am

Very, very happy for you!! 8)
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Latest news on Larry...

Postby BeansMama » Sun May 07, 2017 12:12 pm

CRguy wrote:BIT CHIN '
sista' you made my week

Larry leavin' = don't let the door knob hit yo' skanky ass while you be leavin' Larry ....
Image

time for the squirrel !
Image


WORD !


CR!! I got the dancing squirrel!! I'm dancing right along with him :D

I hope Larry's eviction notice us served smoothly and everything goes well. I'm excited but scared because this is major major surgery.

Thanks for all the support CR. I have always been able to count on you for encouragement.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016


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