Thank you all so much for your best wishes!
After swimming against the tide (=opinion) with my surgeons last week I had a conversation with an Internist today, with a large experience with crc patients that as lifted a load of my shoulders.
He thinks too, that with my current situation (bowl issues post radiation and resection leaving only 2-3 cm of rectum left) I would probably (not certainly, but probabily) have some challenges awaiting.
If I'M choosing this route it is because it is the BEST route for ME. I am a Nurse and I now how to take care of a colostomy (altough now it will be MY colostomy) I. E. I now at least what it is and what can be done with it. And that is a huge advantage in accepting and dealing with all of this, he said
So.. I'm very happy to have his opinion "at my side of things". I trust him A LOT. As well as two other WOCN to whom it spoke to.
This doesn't mean that this is the best decision for everyone - it only means that as decision it is clinically justified and that takes a lot of my insecurities about the future.
So, as CR Guy said, I'm going to own it. Going for it and ain't looking back. And expect to stay alive through the years to tell the story
I'm packing my bag today and the posts that I found here about that are really really helpfully by the way
I ended up with a huge bag but I don't care
Ain't sleeping much but I stay awake eating chocolate, making my stomach wraps or crocheting for my daughter.
I'm making a wrap with black Lycra and some rose lingerie fabric. It takes forever to come up with something nice - now I get why they are so expensive... either that or I'm really bad at it. I think it's probabily the second ahahahaSoccermom2boys
I will gladly send you a picture of the one I finished today.. should I post it here or send it to you? I'm a newbie so I cannot send PMs just yet
I will enjoy each and every perk of having a colostomy and think about the positive side of it as I go, thank you for pointing in that direction! Ehehe
Thank you for the love,
Dx @ 29 yo. Mum (2 y.o.) & Wife
12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d
12/2017: Aspirin, Vit. D3, Curcumin, Multivitamin.