Hi,
My first topic on this forum as I live in the UK. Am a 38 year old high school teacher.
Diagnosed 9th march 2016, symptoms since 2nd Jan 2015.
I have used my life savings of 14 years which were supposed to be for a mortgage to buy a home to pay for Keytruda to treat my cancer.
So far I have had 6 doses and things seem to be going well, around 30 to 40% srinkage on my 4 infected lymph nodes around my waist and some tissue.
My main question is has anyone else with colon cancer and a braf mutation had immunotherapy to treat their cancer and how had it gone?
I could not get onto any suitable trials.
The only evidence I have found of someone else with the same mutations has been quite positive, http://www.discoverymedicine.com/Amikar ... on-cancer/
He is a 54 year old male with identical mutations and missing the same two genes in his cancer as mine, MSH1 and PMS2.
He seems to have got to NED status. The difference being he is on a trail and getting 1000mg of Pembro every 2 weeks, whereas I am self funding and getting 200mg every 3 weeks, so his dose seems around 6 times higher.
Regards
David