Reversal 2 weeks

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Swirdfish
Posts: 290
Joined: Sun Jun 19, 2016 3:57 am

Reversal 2 weeks

Postby Swirdfish » Sat Apr 22, 2017 5:53 am

Hi all,

Well it's been two weeks since my reversal from ULAR surgery and dispite the wife no agreeing I went fishing out in the boat all day. Had a bucket and toilet paper, but I never needed it. Haha aussieasscancer. Then I came home and went out for dinner. Things have def improved of the two weeks, but I still get the urge for a bowel movement but noting happens. But overall I'm glad I can have a day out and actually enjoy it. I skipped breakfast just in case I didn't want to be out in the ocean and need a toilet fast.

I can say it isn't that bad, besides small clustering but hopefully that will improve in the weeks to come.

I return to work Wednesday so that's my next test.

:o
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

[Ana & Alex]
Posts: 96
Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: Reversal 2 weeks

Postby [Ana & Alex] » Sat Apr 22, 2017 1:37 pm

Swordfish I am so glad that things are improving and that you were able to go fishing without your "new normal" getting in the way of it.

Good luck going back to work!
I hope that everyday will get better and better for you!

Keep us posted and..
Stay strong!

Ana
Dx @ 29 yo. Mum (2 y.o.) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d
12/2017: Aspirin, Vit. D3, Curcumin, Multivitamin.

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: Reversal 2 weeks

Postby TXLiz » Sat Apr 22, 2017 3:16 pm

Good for you! Every little bit of life you get to experience again has to feel great and like a victory.

May each day get better and better.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Swirdfish
Posts: 290
Joined: Sun Jun 19, 2016 3:57 am

Re: Reversal 2 weeks

Postby Swirdfish » Sat Apr 22, 2017 6:28 pm

Freddy87 wrote:Swordfish I am so glad that things are improving and that you were able to go fishing without your "new normal" getting in the way of it.

Good luck going back to work!
I hope that everyday will get better and better for you!

Keep us posted and..
Stay strong!

Ana


The best part is not having to worry about a bag on my hip. Have had it caught and spill before, snagged. Such a relief that I don't need to keep checking and emptying it.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

Swirdfish
Posts: 290
Joined: Sun Jun 19, 2016 3:57 am

Re: Reversal 2 weeks

Postby Swirdfish » Sat Apr 22, 2017 7:37 pm

06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

[Ana & Alex]
Posts: 96
Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: Reversal 2 weeks

Postby [Ana & Alex] » Sun Apr 23, 2017 1:41 am

Dear Swirdfish,

Thank you so much for your link. I would gladly review the article (scientifically speaking) with more detail, but just a quick look let's me see that this is a descriptive study without the possibility of any multivariate analysis and therefore it is really not possible, throughout the results, to establish a causality effect between operation technique and quality of life.

This study was also conducted by doctors who analyse quality of life factors as a sum of objective measurable items - which is NEVER the case, specially among cancer patients. When looking for studies about QoL, look for studies done with a sociological aspect.

That is why LAR Patients still have more obstipation and diarrhea problems on a 4 year make than stoma patients, but still are the stoma patients that report poorer functionality. The fact that stoma Patients feel worse about every other dimension may be explained through the meaning of having a stoma instead of the real difficulties of living with it.

So... as you see... it is really hard to tell:

A) Do stoma Patients have poor QoL because they feel worse about having a Stoma, even having less symptoms, than people who had a reversal and have more negative symptoms but cope better because they feel better about their life and themselves,

B) do Stoma Patients have more negative symptoms and therefore worse QoL than Patients that had a reversal.

Through this Study you really can't tell.

But thank you nonetheless, everything that I can find about this thematic I would gladly read and be thankfully for it.

Wishing you the best,

Ana
Dx @ 29 yo. Mum (2 y.o.) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d
12/2017: Aspirin, Vit. D3, Curcumin, Multivitamin.


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