1 year stage Stage IV

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Joined: Tue Aug 16, 2016 3:13 am
Facebook Username: Emily.guzman

1 year stage Stage IV

Postby Lovenothate » Wed Apr 19, 2017 10:13 pm

My mum was diagnosed around a year ago with stage 4 metastasis to the lungs after around a year of being told she had ovarian cysts. In the hospital they told her she had came to late and that cancer had "leaked all over her abdominal cavity." the surgeon gave her a death sentence and I thought I was going to lose my mum less than a semester into my freshmen year of college. Today my mum called me and told me that the Xeloda and Avastin treatment has shrunk her lung nodules and I was finally able to breathe a sigh of relief. I'm hoping soon she will just be on maintenance. I would've never thought we'd come so far in just a year. I know I don't port much but finding you all helped me cope so much. I am so grateful for everyone here and those who have left us too. I know many of you are my seniors but I can't help but think of you all as my close, amazing friends.Thank you Thank you Thank you all, truly.

daughter to DM dx Stage IV CRC @47 July 2016
total hysterectomy b/c ovarian mets abscites 6/16
Folfox 7/16
Lung spots 2mm each 9/16
Xeloda & Avastin 1/17
Shrinkage to lungs spots! 4/17
Break from Avastin/ Xeloda continued 7/17
Omentum mets/ lungs mets stable(possibly not malignant)
Folfiri 8/17
1 lung spot all along-clear abdomen scans chemo break until 4/4/17

Posts: 98
Joined: Sun Aug 28, 2016 6:16 am
Location: Hong Kong

Re: 1 year stage Stage IV

Postby LMighty » Thu Apr 20, 2017 2:08 am

Hi Emily,

What a wonderful news. My mom was diagnosed with Stage IV around the same time as your mother, with also lung metastasis. My mom's mets are in the pleural cavity though causing recurrent effusion so it's quite annoying. She has started Irinotecan + Erbitux and we will be seeing the onc in a week to access the first results.

I wish the best for you and your mother.
Supporter to my mom (64 yr); KRAS wild type; MSS

2012: DX Stage I, rectal cancer; resection and colostomy
5/16: DX Stage III, mets found; right groin lymph node and soft tissue
5-6/16: Radiation + Xeloda
7/16: DX Stage IV, pleural effusion; cancer cells found in fluid
7-12/16: Xelox + Avastin X 6
1/17: Clean PET scan, NED
2/17: Pleural effusion; recurrence
4/17: Iri + Erb X 3
5/17: Ascites; Chemo failed
6/17: Keytruda X 1
7/17: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib)
9/17: At peace

Posts: 35
Joined: Wed Apr 19, 2017 2:58 pm

Re: 1 year stage Stage IV

Postby Rainykatie » Thu Apr 20, 2017 3:35 pm

Hi there. I am new here and still in a bit of shock- my mom was just diagnosed with Stage IV too. We are still reeling with the news. It gives me hope to hear that your mum is doing well 1 year later. Thank you for sharing!
Caregiver to my mom (73)
Dx Stage IV w/ liver, bone mets 4/14/17
Folfox started 4/25/17 - 8 rounds
Took a 6 week break to check some things off the bucket list - great response from chemo - everything shrunk and liver tumors virtually gone
CT scan 9/2017 showed spread to ovaries- laparoscopic surgery at MSK
Resumed Folfox 10/23/17 - 1 round
Surgery to remove primary tumor due to discomfort, 11/7/17. Trouble with recovery, numerous mets to abdomen area found
Passed 12/5/17

Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: 1 year stage Stage IV

Postby TXLiz » Fri Apr 21, 2017 6:34 pm

Happy for you and your Mom!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Posts: 3210
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 1 year stage Stage IV

Postby DarknessEmbraced » Sat Apr 22, 2017 4:21 pm

That's wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Posts: 1478
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: 1 year stage Stage IV

Postby bitchslapped » Sun Apr 23, 2017 9:40 pm

So glad to hear your mother is coming along well on chemo & seeing some good results. It must be a huge relief for you.

Best Wishes for continued response for your DM.

DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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