Reversal

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Swirdfish
Posts: 267
Joined: Sun Jun 19, 2016 3:57 am

Reversal

Postby Swirdfish » Sat Apr 15, 2017 6:02 am

Hi all,

By now I've had my reversal one day ago. Things are good and enjoyed my first poo. The only issue is that I feel the strong urge to go but I don't empty completely. This takes at least ten times to go to the toilet and then I'm fine.

Now what if I don't have a toilet nearby?? Anyone have any suggestions how I can limit the urge to go. At least until a toilet is close by.

Reversal has been easy and this is the only issue I have. It's like I don't fully empty and only small amounts. Is this clustering? But once empty I'm fine.

Even farts feel like I need to go asap. Quite annoying. But whenever I get the urge to go I need to go. No detours.

Also some ideas on a gift or present for my surgeon. He has been awesome. Funny gifts.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

Swirdfish
Posts: 267
Joined: Sun Jun 19, 2016 3:57 am

Re: Reversal

Postby Swirdfish » Sat Apr 15, 2017 10:04 am

Ok so I was at the neighbours house having a few beers and I had to rush out like 3 times to come back home to the toilet.

If I'm at functions or out how can I control my urgency??

Other times I'm normal.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

Aqx99
Posts: 235
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Reversal

Postby Aqx99 » Sat Apr 15, 2017 4:23 pm

I'm still in the early stages of treatment, so can't really help with the bathroom part of your post, but you asked for suggestions for funny gifts for your surgeon and I had to post. Two years ago for Christmas, I gave my husband a plush rectum. I ordered it from Amazon. The company makes a variety of plush organs, and for some reason I decided to get him a rectum. Perhaps your surgeon would enjoy one as well?
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
Diagnosed at age 39
2/21/17 Diagnosis
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR with temp loop ileostomy, ovaries and fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 Started CapeOx, 6 Cycles
7/24/17 Diagnosed with precursor ovarian cancer
9/6/17 CA 125 11.1 U/mL
1/18ish Reversal

AbbyDoo
Posts: 131
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: Reversal

Postby AbbyDoo » Sun Apr 16, 2017 2:30 am

Congradulations on getting the plumbing hooked back up.
To slow things down try Imodium, maybe start off with a 1/2 of one and work up if needed. Keep your food plain and work up to regular food slowly.
I know the reversal surgery for me was a lot harder than the original LAR surgery. It takes time, measure your progress in weeks not days. You will notice as each week passes the bad days will get farther apart and when you hit five months you will look back and wonder how the hell you made it threw that shit.
Hang in there you will be pooping like a big boy again pretty soon.
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

Swirdfish
Posts: 267
Joined: Sun Jun 19, 2016 3:57 am

Re: Reversal

Postby Swirdfish » Sun Apr 16, 2017 6:34 am

Okay I took an Imodium. I need help!! I cannot stay off the toilet. X3 accidents already plus x3 in the shower.

Now I know why people opt for a permanent bag. But that's not an option for me.

I just wish I could clear it all out and get on with my day.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

[Ana & Alex]
Posts: 81
Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: Reversal

Postby [Ana & Alex] » Sun Apr 16, 2017 9:42 am

Dear Swirdfish,

Have you tried a combination of fiber (Optifiber) and Imodium? I read about it here in the forum and in the right amounts i think it can help clustering and to slow things down.

What I dread, more than a bag, is to be in the situation you are right now. I hope it gets better with time. I really really do.

Until then try to spoil yourself in the quiet moments you have and keep good energies. A little Humour has always been a life saver for me in my thoughest days.

Sending you good vibes and wishing you all the best!

Stay strong!
Ana
Dx @ 29 yo. Mum (22. Mo) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d

Swirdfish
Posts: 267
Joined: Sun Jun 19, 2016 3:57 am

Re: Reversal

Postby Swirdfish » Sun Apr 16, 2017 7:47 pm

Freddy87 wrote:Dear Swirdfish,

Have you tried a combination of fiber (Optifiber) and Imodium? I read about it here in the forum and in the right amounts i think it can help clustering and to slow things down.

What I dread, more than a bag, is to be in the situation you are right now. I hope it gets better with time. I really really do.

Until then try to spoil yourself in the quiet moments you have and keep good energies. A little Humour has always been a life saver for me in my thoughest days.

Sending you good vibes and wishing you all the best!

Stay strong!
Ana


Thanks Freddy,

I think the Imodium gave me some of my life back, however it may of worn off and a little midnight accident. Another pill and I managed to get back to bed. I'm not going do over do it, but I think as you suggested the fibre could also help.

I'll give it a try.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

Jacques
Posts: 408
Joined: Sun Dec 28, 2014 10:38 am

Re: Reversal

Postby Jacques » Mon Apr 17, 2017 1:42 am

Swirdfish -

Since you are a mechanic by profession, I would imagine that you must know something about BMWs ...

Fortunately, the MD Anderson Cancer Center has a website with a collection of "BMW repair manuals" (see link below)

MD Anderson - Bowel Management Webpage

I'm sure you can find something there that will be of use.

In case you didn't know already, on this message board the acronym BMW has a very special meaning -- it refers to Bowel Management Worries. I first learned about this from a 2010 post by member CRguy.
.
DX(2012): RC
Stage IIc,T4b N0 M0 L0 PN1 H0 D0 P0 I1
LAR
MSI: not tested
Chimio-radiothérapie
Chimiothérapie adjuvante : capécitabine + oxaliplatine
CEA < 1.0,
5 years NED,
End of 6-month follow-ups: 7/2017
----
Info links:
Create Your Signature
How to Select a Surgeon
List of Forum Features
Colorectal Cancer Stages (TNM)

Swirdfish
Posts: 267
Joined: Sun Jun 19, 2016 3:57 am

Re: Reversal

Postby Swirdfish » Mon Apr 17, 2017 3:41 am

Jacques wrote:Swirdfish -

Since you are a mechanic by profession, I would imagine that you must know something about BMWs ...

Fortunately, the MD Anderson Cancer Center has a website with a collection of "BMW repair manuals" (see link below)

MD Anderson - Bowel Management Webpage

I'm sure you can find something there that will be of use.

In case you didn't know already, on this message board the acronym BMW has a very special meaning -- it refers to Bowel Management Worries. I first learned about this from a 2010 post by member CRguy.
.
.

Thankyou.

The Imodium has given me some life back but only holds it in so long couple hrs. I at least have to be within 3 - 6 meters of a toilet or I'll be changing my pants.

I'll. heck the site.

Good one on the BMW's.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17


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