SBRT (cyber knife) - side effects ?

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Tim UK
Posts: 60
Joined: Fri Jun 12, 2015 1:05 am

SBRT (cyber knife) - side effects ?

Postby Tim UK » Thu Apr 13, 2017 2:19 pm

Hi all,

I've had two of my three scheduled sessions on the CK, the second this afternoon. It's targeting the persistent met in my liver. I'm still on the immunotherapy trial that I've posted about a couple of times (Roche: bispecific antibody plus pd-l1).

In the last day or so I have had some serious tenderness and bloating in my upper abdomen, under the ribs, both sides. Wondering if anyone has similar (or indeed any) side effect experiences on SBRT or regular therapy.

Thanks in advance,

Tim
https://www.youtube.com/watch?v=qoQbY4A5RNA
05/15 L hemi-colectomy - robotic, laparoscopic
05/15 Dx st 3 T4N2M0 @43
kids: 11,7
BRAFm mucinous - KRASw
06/15 2 liver mets
06/15 CEA 9, CA19-9 400+
06/15 - 09/15 6 x FOLFOXIRI+Avastin
09/15 markers 4/50
10/15 drain-site met
11/15 CRS+HIPEC
1-8/16 BRAF therapy (dabrafenib, panitumumab, trametinib)
CEA;CA19-9: 1/16 16;650 | 2/16 3;690 | 3/16 1;36 | 4/16 2;46 | 5/16 1;29 | 6/16 1;42 | 7/16 2;44 | 8/16 3;72 and 4;135
8/16 progression (PET)
10/16 Trial: NCT02650713

KElizabeth
Posts: 388
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: SBRT (cyber knife) - side effects ?

Postby KElizabeth » Fri Apr 14, 2017 3:56 pm

I didn't have CK but when my liver was microwaved I had the same thing. I felt like my abdomen was filled with extra fluid. It even looked extended. It was very uncomfortable and even hurt when lightly brushed or touched. It took longer to feel pain free than anyone told me. I was worried my liver was bleeding, but an ultrasound showed it wasn't.

I imagine since both techniques zap the tumors and get it very hot, the after effects could be similar.

Hang in there.
Elizabeth
Female age 38- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 -current
CEA at recurrence:10.1/august, 2015
CEA: 1.9 February, 2016
CEA: 16.4 March 2017
CEA: 90.1 October 2017

Tim UK
Posts: 60
Joined: Fri Jun 12, 2015 1:05 am

Re: SBRT (cyber knife) - side effects ?

Postby Tim UK » Wed Apr 19, 2017 7:47 am

Elizabeth thanks so much for replying.

I had my third & last cyber knife RT session yesterday. After about 6 hours the same thing happened: bloating, discomfort, cramping. Today (36 hrs later) it's way better.

In case anyone else undergoes the same combination of immuno + radio, my docs don't seem concerned. They reckon it might be evidence of an abscopal effect taking place (good) or the RT causing irritation to my bowel, being adjacent to the target lesion, leading to colitis, cramp etc (neutral).

Scans in 8 weeks to determine effectiveness, if any. I'll update then.

Tim
https://www.youtube.com/watch?v=qoQbY4A5RNA
05/15 L hemi-colectomy - robotic, laparoscopic
05/15 Dx st 3 T4N2M0 @43
kids: 11,7
BRAFm mucinous - KRASw
06/15 2 liver mets
06/15 CEA 9, CA19-9 400+
06/15 - 09/15 6 x FOLFOXIRI+Avastin
09/15 markers 4/50
10/15 drain-site met
11/15 CRS+HIPEC
1-8/16 BRAF therapy (dabrafenib, panitumumab, trametinib)
CEA;CA19-9: 1/16 16;650 | 2/16 3;690 | 3/16 1;36 | 4/16 2;46 | 5/16 1;29 | 6/16 1;42 | 7/16 2;44 | 8/16 3;72 and 4;135
8/16 progression (PET)
10/16 Trial: NCT02650713


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