Feeling scared about urgent pet scan

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chrissyrice
Posts: 1150
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Feeling scared about urgent pet scan

Postby chrissyrice » Wed Apr 19, 2017 9:26 pm

I had a lymph node removed that was closed to the aorta... had surgery at a major NCI cancer center here in Atlanta at Emory University Hospital.

If you can get to NY and consult with a major hospital that handles more complex surgeries might be a good choice.

Chrissy
Dx 10-31-09 Surgery 12-1-09 Sigmoid Colon Stage IIIb; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU & Leucovorin;12-16-2010 PET/CT Scan Cancer Free;7-05-2012 CT Scan NED 2 years;10-13-2013 NED 3 yrs; 08-01-2014 NED 4 yrs; 06-30-2015 Stage 4 iliac lymph node(s) 08-11-2015 Surgery 3 cm tumor and iliac artery graft done. Positive margins in the abdominal aorta, No chemo. 03-16-2016 CT Scan Stable,06-16-2016 CT Scan Stable,09-21-2016 CT Scan Stable,12-2016 Stable,03-31-17 Stable,
Recurrence 6-30-17

PainInTheAss
Posts: 661
Joined: Tue Jul 02, 2013 3:08 am

Re: Feeling scared about urgent pet scan

Postby PainInTheAss » Thu Apr 20, 2017 6:11 am

I'm so sorry you're going through this.

Did they mention what kind of radiation they might do? I had a lymph node that lit up on my original PET that was near my spine and out of the surgical area so it got left behind. My post treatment MRIs have shown it as all clear, but before I knew that, I talked about treatment options if it biopsied as cancer. One option was Gamma Knife. When I first read about Gamma Knife, they were only using it on brain tumors. I was surprised that my cancer center was using it on other parts of the body. It is much more focused than the radiation you get with CRT.

I hope your biopsy comes back negative, and it's just something weird.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

TXLiz
Posts: 214
Joined: Thu Sep 22, 2016 3:31 pm

Re: Feeling scared about urgent pet scan

Postby TXLiz » Thu Apr 20, 2017 3:28 pm

I am so sorry Sammer. That utterly stinks.

I wish I had good advice or some knowledge but I don't.

All I know is I am sorry for this happening to you and I hope you get the best possible treatment and results.

I hate that damn pump also. I was in chemo one day and was wondering how I could be rid of it...and my nurse said drowning it in the toilet would probably do the trick. Now every time I see a toilet, I fantasize about drowning the pump.

Hugs to you.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear


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