When breath becomes air

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Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

When breath becomes air

Postby Steph20021 » Sun Apr 09, 2017 8:58 pm

What a great read, for everyone, but really will resonate with stage 4 patients. I read it in one day, I couldn't put it down.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: When breath becomes air

Postby CRguy » Sun Apr 09, 2017 10:01 pm

Assuming ... :shock: this is the reference you mean ????
http://www.npr.org/sections/health-shot ... f-his-life

have not read, BUTT have read many "journals" by medical folks of their own Journeys as patients !
BTDT ( = am there doing that :oops: )
Will take your advice and give it a look thanks !

Cheers and Harmony
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: When breath becomes air

Postby jhocno197 » Sun Apr 09, 2017 10:24 pm

I read this.

Cried sooooo hard.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: When breath becomes air

Postby DarknessEmbraced » Mon Apr 10, 2017 5:58 pm

I read it too. Amazing story but also very sad.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Stewsbetty
Posts: 170
Joined: Thu Jul 14, 2016 7:08 am

Re: When breath becomes air

Postby Stewsbetty » Tue Apr 11, 2017 9:34 pm

Read this a couple weeks ago. Very well written story and even though only stage 3 still resonated with me. :)
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: When breath becomes air

Postby TXLiz » Tue Apr 11, 2017 11:18 pm

Very brave man, very brave wife. May God bless his family. I am so grateful to read of such bravery, and spirit. It's so easy to feel hopeless and give up. This gentleman did not. A great lesson for us all.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear


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