Julie I love your blog and always read the minute I get my email,notification that you've posted. Your latest blog brought me to near tears. I was on the edge of my seat wondering if you would still elect to do the trial given the risk or not. I am not sure what I would do in your shoes but I hope I'd be as brave as you are. I am rooting for you and wondering when you will have your first scan to check on the progress. Wishing you all the best, always. Thanks for sharing. You have a beautiful way with words. But honestly, your account of how rough immunotherapy is, came to me as quite a shock. It's the first account I've read that makes it sound so painful and horrible. Love your honesty.
Last edited by Steph20021
on Sun Apr 23, 2017 12:30 am, edited 1 time in total.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Currently stable suce Aug/16- on folfiri