Introduction

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Basil
Posts: 270
Joined: Thu Mar 16, 2017 12:33 pm

Introduction

Postby Basil » Thu Apr 06, 2017 8:51 pm

I've posted a couple of times but not introduced myself. My stats are follows, best I can tell from my newb experience with cancer acronyms.

40 y/o male, 2 sons 5 & 8
Diagnosed 3/16/17, s3,t2,n1,mo
Prospect trial, no radiation
FOLFOX 4/6/17 (in lieu of radiation)
Resection scheduled summer 2017
Being treated Houston/MD Anderson

I have a friend who had the same cancer I do, mid-rectum. From him and the docs I have learned a lot. Still scared, obviously, but not nearly in the dark I was 2 and a half weeks ago. Had first FOLFOX yesterday, pump to be removed tomorrow. No side effects yet except for cold sensitivity, which actually feels pretty cool, at least at this point. Anyway, hello and sorry I have to meet you like this.

Brian
40 y/o male, kids 8&11
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Introduction

Postby JudeD59 » Fri Apr 07, 2017 1:07 pm

Hi, Brian, and welcome to the board. It'll be great to hear from someone in the Prospect trial.

Glad to hear you are doing well after your infusion. For many people, including me, the toughest days were after the 5FU pump came off, so days 4 and 5. Just be sure to call your doctor for any meds you need to handle anxiety, nausea, diarrhea, etc. If what they already gave you isn't helping, call so they can order something else. Don't suffer side effects needlessly.

Take care of yourself,

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

Basil
Posts: 270
Joined: Thu Mar 16, 2017 12:33 pm

Re: Introduction

Postby Basil » Fri Apr 07, 2017 8:34 pm

Timely response. Just lost the pump this afternoon. So far, no side effects other than cold sensitivity and some chemo brain. This is round one of twelve to fourteen, although the latter portion will be after surgery.
40 y/o male, kids 8&11
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Introduction

Postby jhocno197 » Sat Apr 08, 2017 8:42 am

Welcome.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Introduction

Postby KElizabeth » Sat Apr 08, 2017 9:11 am

Welcome to the club. I'm glad Folfox is treating you well so far. The side effects can get worse the further you go so keep your doctor up to date on how your feeling. It's best to stay ahead on the nausea meds so it doesn't get out of control.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

DarknessEmbraced
Posts: 3472
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Introduction

Postby DarknessEmbraced » Sat Apr 08, 2017 5:54 pm

Welcome to the board and I'm glad your treatment is going well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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