Local recurrence

Please feel free to read, share your thoughts, your stories and connect with others!
Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Local recurrence

Postby Lydia666 » Thu Apr 06, 2017 4:56 pm

For those with local rectal recurrence, how did you find out and what was your outcome? Thank you.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

PainInTheAss
Posts: 678
Joined: Tue Jul 02, 2013 3:08 am

Re: Local recurrence

Postby PainInTheAss » Sat Apr 08, 2017 5:51 am

I didn't have a local recurrence, but I've had all kinds of weird pains in the pelvic area. My Oncologist has told me not to worrry unless I have pain that keeps me up at night. If I didn't take his advice, I would probably think I had a recurrence every week. I also have pain off and on on my right side that started in January. My scans are due, so we are just doing them to check it. He did not seem worried about it at all. He told me that if I had a recurrence that was causing pain, I would be losing weight and have a lot more symptoms.

It's so hard not to worry when you have kids. I get MRIs of the pelvis and abdomen instead of CTs because we can't get a PET approved. See if you can get a pelvic MRI to check symptoms if your Onc is reluctant to scan you.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Local recurrence

Postby Lydia666 » Sat Apr 08, 2017 12:43 pm

Thank you for your answer. I am currently on vacation on a sunny island and managed to reach both my surgeon and onc. They seem pretty sure it isn't recurrence since i had aclean scope 4 months ago. My onc thinks that the rectum is irritated from the sun given that i was irradiated in the pelvic area. I have a ct scan coming up and if symptoms don't stop, a scope. To be followed...
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 164 guests