Postby PainInTheAss » Sat Apr 08, 2017 5:51 am
I didn't have a local recurrence, but I've had all kinds of weird pains in the pelvic area. My Oncologist has told me not to worrry unless I have pain that keeps me up at night. If I didn't take his advice, I would probably think I had a recurrence every week. I also have pain off and on on my right side that started in January. My scans are due, so we are just doing them to check it. He did not seem worried about it at all. He told me that if I had a recurrence that was causing pain, I would be losing weight and have a lot more symptoms.
It's so hard not to worry when you have kids. I get MRIs of the pelvis and abdomen instead of CTs because we can't get a PET approved. See if you can get a pelvic MRI to check symptoms if your Onc is reluctant to scan you.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation