Back on the panic train!-UPDATE

Please feel free to read, share your thoughts, your stories and connect with others!
Lydia666
Posts: 644
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Back on the panic train!-UPDATE

Postby Lydia666 » Wed Apr 05, 2017 5:12 pm

I saw something red in my stool today and possibly a little mucus on the paper. Not sure if ate something red, if so nothing significant- possibly a little red pepper. My last coloscopie was in December, exactly 4 months ago. Can a recurrence show up like that? Thank you for any input.
*Update *
Had the scope today- april 26, 2017- all clean! It was a hemoroid! Ugh!
Last edited by Lydia666 on Wed Apr 26, 2017 7:25 pm, edited 2 times in total.
Oct 2012- thyroid cancer
June 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/chemo 5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda /positive CHEK2 mutation
May 2016- clear CT
July 2016- ileo reversal
August 2016- DCIS breast cancer
Oct 13,2016 - lumpectomy
Dec 2016 - clean scope
Feb 24,2017- prophylactic double mastectomy
April 2017- clean scope
May 2017 -clean CT scan
Mom to 2 & 5 yrs daughters

DarknessEmbraced
Posts: 2596
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Back on the panic train!

Postby DarknessEmbraced » Wed Apr 05, 2017 5:35 pm

It's most likely a little bit of red pepper. I would keep an eye on it.*hugs* I'm the same way when it comes to my stool. Ever since my diagnosis I'm very vigilant.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/2016
NED 11/10/16

User avatar
LPL
Posts: 225
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Back on the panic train!

Postby LPL » Wed Apr 05, 2017 5:58 pm

Hi Lydia666,
Yes maybe you have eaten something that caused that?
Or - could it be a side effect? .... from Xeloda (http://chemocare.com/chemotherapy/drug-info/Xeloda.aspx )
But you are not taking that are you?
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Lydia666
Posts: 644
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Back on the panic train!

Postby Lydia666 » Wed Apr 05, 2017 6:53 pm

No, i took xeloda a year ago. The mucus bothers me.
Oct 2012- thyroid cancer
June 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/chemo 5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda /positive CHEK2 mutation
May 2016- clear CT
July 2016- ileo reversal
August 2016- DCIS breast cancer
Oct 13,2016 - lumpectomy
Dec 2016 - clean scope
Feb 24,2017- prophylactic double mastectomy
April 2017- clean scope
May 2017 -clean CT scan
Mom to 2 & 5 yrs daughters

User avatar
WriterGirl1969
Posts: 417
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Back on the panic train!

Postby WriterGirl1969 » Thu Apr 06, 2017 7:39 am

Lydia666 wrote:I saw something red in my stool today and possibly a little mucus on the paper. Not sure if ate something red, if so nothing significant- possibly a little red pepper. My last coloscopie was in December, exactly 4 months ago. Can a recurrence show up like that? Thank you for any input.


UGH, it's so hard *not* to panic when you see red in your stool, isn't it? I can definitely understand. My oncologist told me to look for anything "persistent," as I did have one hard stool that caused a very small amount of bleeding, but it never happened again after that one time, which was a huge relief.

The mucus can be caused by a number of things, but most often from diet is what I've read. Try not to let it freak you out.

Hugs and Prayers,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear
NED at 1 year
“If I can help somebody as I walk along, then my living shall not be in vain.”

User avatar
WriterGirl1969
Posts: 417
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Back on the panic train!

Postby WriterGirl1969 » Thu Apr 06, 2017 8:12 am

I should temper that advice by saying you should definitely stay vigilant, just keep breathing while you do it.
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear
NED at 1 year
“If I can help somebody as I walk along, then my living shall not be in vain.”

Lydia666
Posts: 644
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Back on the panic train!

Postby Lydia666 » Thu Apr 06, 2017 1:32 pm

Thank you all. I left a message for my oncologist today, she might calm me down and also she might order some tests before i get to see her on the 18th. I am away on vacation right now.
I have not seen blood on poop since, but mucus on paper and maybe tiny specs of blood on paper. I am hoping it's from my recent intake of antibiotics, pain killers, constipation etc ..after my double mastectomy.

I shall post updates with whatever is next.
Oct 2012- thyroid cancer
June 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/chemo 5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda /positive CHEK2 mutation
May 2016- clear CT
July 2016- ileo reversal
August 2016- DCIS breast cancer
Oct 13,2016 - lumpectomy
Dec 2016 - clean scope
Feb 24,2017- prophylactic double mastectomy
April 2017- clean scope
May 2017 -clean CT scan
Mom to 2 & 5 yrs daughters

User avatar
Hannah Faulkner
Posts: 29
Joined: Tue Feb 14, 2017 3:14 am

Re: Back on the panic train!

Postby Hannah Faulkner » Fri Apr 21, 2017 7:58 am

Hi Lydia666, Its good being vigilant instead of things going out of our hands

janklo
Posts: 1562
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: Back on the panic train!

Postby janklo » Fri Apr 21, 2017 12:30 pm

Lydia, funny story, when my daughter was about a year out from diagnosis she had red in her stool and went to the ER. Tests revealed it was not blood but food dye. Them she remembered she had eaten red velvet cake.

So hopefully yours is the same kind of silly thing!
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

TXLiz
Posts: 173
Joined: Thu Sep 22, 2016 3:31 pm

Re: Back on the panic train!

Postby TXLiz » Fri Apr 21, 2017 6:23 pm

I feel you. My onc said changes that persist are worrisome...a change that lasts 2 weeks or more, also.

Hope it's nothing.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"

Lydia666
Posts: 644
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Back on the panic train!

Postby Lydia666 » Sat Apr 22, 2017 3:31 pm

My surgeon says it's practically impossible to have a recurrence after 4 months but for my peace of mind he is willing to do a short scope , just to verify my rectum.

I have the scope April 26 and a scan on May 4th. So we'll have an answer soon.
Oct 2012- thyroid cancer
June 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/chemo 5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda /positive CHEK2 mutation
May 2016- clear CT
July 2016- ileo reversal
August 2016- DCIS breast cancer
Oct 13,2016 - lumpectomy
Dec 2016 - clean scope
Feb 24,2017- prophylactic double mastectomy
April 2017- clean scope
May 2017 -clean CT scan
Mom to 2 & 5 yrs daughters

DarknessEmbraced
Posts: 2596
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Back on the panic train!

Postby DarknessEmbraced » Sat Apr 22, 2017 4:18 pm

I'm glad you'll have answers soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/2016
NED 11/10/16

Lee
Posts: 4829
Joined: Sun Apr 16, 2006 4:09 pm

Re: Back on the panic train!

Postby Lee » Sat Apr 22, 2017 6:09 pm

I agree with your surgeon, butt I also understand your fears. I'm glad your surgeon is taking your concerns seriously.

Here's to hoping it's nothing serious,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Lydia666
Posts: 644
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Back on the panic train!-UPDATE

Postby Lydia666 » Wed Apr 26, 2017 7:21 pm

Had the scope- all clean!! Go figure!
Oct 2012- thyroid cancer
June 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/chemo 5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda /positive CHEK2 mutation
May 2016- clear CT
July 2016- ileo reversal
August 2016- DCIS breast cancer
Oct 13,2016 - lumpectomy
Dec 2016 - clean scope
Feb 24,2017- prophylactic double mastectomy
April 2017- clean scope
May 2017 -clean CT scan
Mom to 2 & 5 yrs daughters

User avatar
LPL
Posts: 225
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Back on the panic train!-UPDATE

Postby LPL » Wed Apr 26, 2017 7:45 pm

Wonderful News :D
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Bing [Bot], LMighty and 49 guests