Postby PainInTheAss » Wed Apr 05, 2017 6:44 pm
My surgeon set up my appointment with my Oncologist, and I had no reason to seek another opinion. Everything I was told matched up with what I was reading other people on this board's experiences (I found this board before I was even officially diagnosed). The one exception was when I couldn't get a follow up PET scan approved even with an appeal, I had read on here that other patients were getting MRIs instead. I asked him if we could get an MRI, and he said yes like it was a great idea and wondered why he didn't think of it himself.
I would suggest you look around at signatures and see what treatments were offered to patients it's your same stage, especially recently. Sometimes the lone opinion is keeping up with the latest research. Ultimately, you have to go with your gut.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation