Painful sex after surgery and radiation? Anyone else suffer with this?

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rmblack
Posts: 27
Joined: Mon Oct 13, 2014 1:47 am

Painful sex after surgery and radiation? Anyone else suffer with this?

Postby rmblack » Mon Apr 03, 2017 9:33 pm

I've searched the forum but couldn't find anything. Wondering if there are other women suffering from painful sex after having so much radiation.
Rhonda- 41
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!

Philippians 3 14

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Painful sex after surgery and radiation? Anyone else suffer with this?

Postby CRguy » Mon Apr 03, 2017 10:16 pm

You would pretty much need to read the posts from Jaynee = weisssoccermom
AND all the topics she has posted into and their replies ......

Best wishes
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

rmblack
Posts: 27
Joined: Mon Oct 13, 2014 1:47 am

Re: Painful sex after surgery and radiation? Anyone else suffer with this?

Postby rmblack » Mon Apr 03, 2017 10:17 pm

Thank you so much!
Rhonda- 41
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!

Philippians 3 14

User avatar
CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Painful sex after surgery and radiation? Anyone else suffer with this?

Postby CRguy » Mon Apr 03, 2017 10:24 pm

You are most welcome ...
Stay strong on the Journey sista'

Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
kellywin
Posts: 484
Joined: Wed Jan 23, 2013 4:46 pm
Location: Northern CA

Re: Painful sex after surgery and radiation? Anyone else suffer with this?

Postby kellywin » Tue Apr 04, 2017 1:36 pm

Rhonda - you are not alone. There are several threads on this, here's a recent one. http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=57249. Get a great gynecologist ASAP.
Kelly, mom 13 yo girl
Dx 11/15/12 Rectal Cancer @ age 40
Stage IIIC
5.5 weeks Xeloda & Radiation - complete 2/5/13
Colectomy 3/12/13, 7 of 14 nodes positive - no ileo
4/24/13-8/20/13 - 5 rounds Xelox, 1 Xeloda only
7/2015 Clear colonoscopy!
4/2018 Clear CT!

rmblack
Posts: 27
Joined: Mon Oct 13, 2014 1:47 am

Re: Painful sex after surgery and radiation? Anyone else suffer with this?

Postby rmblack » Tue Apr 04, 2017 5:36 pm

My nurse called me today and she and my doctor are suggesting I go back to MD Anderson. She said I have a rare case due to the fact that my tumor had grown into my vaginal wall and so much had to be cut out. Also 50 radiation treatments just made things much worse. So hopefully someone has answers for me and I can get on the right track.
Rhonda- 41
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!

Philippians 3 14

PainInTheAss
Posts: 661
Joined: Tue Jul 02, 2013 3:08 am

Re: Painful sex after surgery and radiation? Anyone else suffer with this?

Postby PainInTheAss » Wed Apr 05, 2017 6:33 pm

Same thing happened to me except my tumor broke through my vaginal wall. Because the surgical site was so painful I could not use dislators. I still can't even stick my finger in there without a lot of pain. I was told that I can get some kind of procedure done to remove some of the scar tissue, but I am not real excited about getting another surgery in an area ravaged by radiation. I will consider it after my 4 year scans are clear.

I read a thread recenty where a woman said that if her husband knew how much sex hurt, he wouldn't have sex with her. That is such a woman thing to say. I could see myself falling in love and enduring pain for intimacy's sake. That's the only reason I am considering the surgery. Right now, attractive men make me just want to cross my legs and wince. But I'm not convinced a surgery will change that.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Painful sex after surgery and radiation? Anyone else suffer with this?

Postby BrownBagger » Fri Apr 07, 2017 12:15 pm

I had pain during sex during radiation treatments. So much pain that I had a vocal response--unusual for me. My wife said, "It's good to see you expressing your pleasure verbally for a change." I'm like, "It's pain, not pleasure."

And then......she didn't want to do it anymore. I'm like, "No, no, you don't understand...."
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.


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