Pete-lost-at-sea, Peter Trayhurn

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radnyc
Posts: 437
Joined: Tue Apr 06, 2010 6:32 pm

Pete-lost-at-sea, Peter Trayhurn

Postby radnyc » Sat Apr 01, 2017 12:46 pm

Peter Trayhurn who was on this board a while back and created some controversy is now in palliative care. I always admired his unabashed desire to survive at seemingly any cost. He tried almost any treatment under the sun that he could afford, including some that seemed a bit shady. I respect his will to live and his tenacity to try anything to keep going, I've been following his blog for months and I've gotten a wider perspective on the man. He is a good father and a decent human being who has fought this dammed disease with all he could. I wish him a peaceful journey.

blog:

http://petertrayhurn.blogspot.com

Al
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

stu
Posts: 1396
Joined: Sat Aug 17, 2013 5:46 pm

Re: Pete-lost-at-sea, Peter Trayhurn

Postby stu » Sat Apr 01, 2017 2:57 pm

Hi,
I have a big soft spot for him too. I have kept a wee eye on his blog. He kept his manners in the face of criticism and I so admire him .
Peace be his journey.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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dianetavegia
Posts: 2724
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Pete-lost-at-sea, Peter Trayhurn

Postby dianetavegia » Sat Apr 01, 2017 4:13 pm

I almost posted about him last week. His son had posted for him one day. He fought so hard to live. I wish him peace and no pain.

God speed, Pete!
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Pete-lost-at-sea, Peter Trayhurn

Postby BrownBagger » Sat Apr 01, 2017 7:13 pm

All the best to Pete as he nears the end of his journey. Guy has (had) some balls and determination. I always admired that.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

PainInTheAss
Posts: 663
Joined: Tue Jul 02, 2013 3:08 am

Re: Pete-lost-at-sea, Peter Trayhurn

Postby PainInTheAss » Sat Apr 01, 2017 11:19 pm

He was supposed to go back to Germany for more treatments at the end of March, but landed in the hospital too sick to travel. He was hoping right up until recently to go back. I've been rooting for him, as well.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

DarknessEmbraced
Posts: 3525
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Pete-lost-at-sea, Peter Trayhurn

Postby DarknessEmbraced » Sun Apr 02, 2017 2:34 pm

I wish Pete peace!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Pete-lost-at-sea, Peter Trayhurn

Postby Maia » Mon Apr 03, 2017 10:46 am

Sending Pete my best wishes for many more peaceful and surrounded-by-love days. His kids are with him, that's wonderful.

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Pete-lost-at-sea, Peter Trayhurn

Postby fumaros » Mon Apr 03, 2017 3:18 pm

Pete, I wish strength and love are by your side always.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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CRguy
Posts: 10246
Joined: Sun Feb 10, 2008 6:00 pm

Re: Pete-lost-at-sea, Peter Trayhurn

Postby CRguy » Mon Apr 03, 2017 6:11 pm

In my years here, and elsewhere, I will say that Pete is absolutely one of a kind.
He pushed boundaries, limitations and never accepted “No” as an answer, and opened up new discussions for patients “ on the Journey ! “

To paraphrase :
If everyone is thinking alike, then somebody isn't thinking- George S. Patton

Yes, Pete ruffled a few feathers in a few places … BUTT he was always one to walk his own path and sometimes to a different drummer….
and could never be accused of “ thinking alike “ ... he did his own thing and shared it with us all.

I sincerely wish him and his loving family Love, Peace and Harmony while they have time left together, on his final Journey.

In the final analysis all we really have is, WHO we are,
and as I said, Pete is one of a kind.

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Maggie Nell
Posts: 1142
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Pete-lost-at-sea, Peter Trayhurn

Postby Maggie Nell » Tue Apr 04, 2017 4:26 am

Oh no, not an aussie!! :(

pete43lost_at_sea
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r.j hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Sorbitol is the Devil
Ordained Dudeist Priest at Dudeism, the Church of the Latter-Day Dude 8)

stu
Posts: 1396
Joined: Sat Aug 17, 2013 5:46 pm

Re: Pete-lost-at-sea, Peter Trayhurn

Postby stu » Sun Apr 09, 2017 3:58 pm

Bit sad to see Pete's latest blog update. He looks very defeated.
Much love to him and his wee family at such a difficult time.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


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