LOW 'good cholesterol' and CEA levels!

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dianetavegia
Posts: 2731
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

LOW 'good cholesterol' and CEA levels!

Postby dianetavegia » Thu Mar 30, 2017 2:39 pm

My CEA is still normal but has never been under 2.7 ish. Labcorp high norm is 3.9. This reading was 3.4 and I had fasted 12 hours, no water prior to the test and happened to do a search that brought up the fact that a low HDL reading has been proven to cause all groups to have higher end readings (you'll have to read the paper to understand) no matter BMI, prior smoking status and more.

My good HDL has been low every year (4 years) that I have on record with Blue Cross.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3102869/

Meanwhile, my CT scan of my chest has not been released and I'm beyond freaked out. The imaging center doesn't have anything to do with 'My Chart' so they have no answer and I left a message on the doctor's test result line because I don't see him for almost 2 more weeks. I hope to hear back quickly from him/ them. The imaging center offered to re fax the results in case they were misplaced. Does that mean the doctor is the one who allows me to access the records.... Looked up the fine print and the doctor releases the test results once he's seen them. My doctor usually gets around to allowing my blood work to be posted about 2 weeks after Labcorp has them online for me to see!


My MRI/ MRU were great. Those were ordered by the urologist. The 4 teeny mm nodules in my lungs since my very first CT scan in 2/ 2009 have been deemed benign and were no longer to be noted. Meanwhile, I'm falling apart!
Last edited by dianetavegia on Thu Mar 30, 2017 3:51 pm, edited 1 time in total.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: LOW 'good cholesterol' and CEA levels!

Postby DarknessEmbraced » Thu Mar 30, 2017 3:04 pm

I hope your ct scan results will be released soon!*hugs* I know it's very nerve-wracking waiting! I hope it's good news! My good cholesterol was low the last time it was checked.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
dianetavegia
Posts: 2731
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: LOW 'good cholesterol' and CEA levels!

Postby dianetavegia » Thu Mar 30, 2017 3:26 pm

Thanks. The cholesterol link makes sense with my CEA never being super low.

Wish they'd call me.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

cmrl
Posts: 174
Joined: Mon Apr 21, 2014 8:39 pm

Re: LOW 'good cholesterol' and CEA levels!

Postby cmrl » Sat Apr 01, 2017 7:03 am

I hope you have some good news soon. I am close to your age with a cea that also hovers over 3, and I tend to be anxious, so I always read your postings, and I'm amazed at the resources you find regarding cea. Thank you for sharing these,
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

mhf1986
Posts: 158
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Re: LOW 'good cholesterol' and CEA levels!

Postby mhf1986 » Sun Apr 02, 2017 6:46 pm

This is sneaky and it might not work but it has for me...call the imaging center and calmly tell them you need the results faxed to another location. Then give them your/spouse's/friend's Work fax number. Don't tell the center it's not a dr's office, just that the results need to go to fax # XX.

I did that when I couldn't stand waiting for results a few years ago. Now, with HIPPA, the imaging place may not do it.

The danger of course is that you will not be able to interpret the results and freak yourself out even more.
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace


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