My reversal!
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Joannerogers
- Posts: 260
- Joined: Tue Jun 16, 2015 4:50 pm
My reversal!
It's been a long road but after a year, I finally got my reversal. I went in monday...surgery went good...had my bm on tuesday night so I was able to go home today (Wednesday). So far I have not had any accidents! I can tell when I might have to go and I can concentrate on holding it! I'm so pleased! I hope it will continue to be this way. I hope this helps someone else who's getting ready for their reversal or for someone trying to decide whether to get a reversal or not. Through God....all things are possible. I had people praying for me all over the world! I truly believe these prayers were answered.
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Re: My reversal!
Yay for you! Good wishes and continued victory!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear
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Joannerogers
- Posts: 260
- Joined: Tue Jun 16, 2015 4:50 pm
Re: My reversal!
Thank you!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Re: My reversal!
Good luck, I hope you continue to have great success!
DX Dec 2015 at age 41
Stage 3 RC
Radiation and xeloda
May 2016 LAR and temp ileo
8 rounds chemo
Nov 2016 ileo reversed!
Stage 3 RC
Radiation and xeloda
May 2016 LAR and temp ileo
8 rounds chemo
Nov 2016 ileo reversed!
Re: My reversal!
Joannerogers wrote:It's been a long road but after a year, I finally got my reversal. I went in monday...surgery went good...had my bm on tuesday night so I was able to go home today (Wednesday). So far I have not had any accidents! I can tell when I might have to go and I can concentrate on holding it! I'm so pleased! I hope it will continue to be this way. I hope this helps someone else who's getting ready for their reversal or for someone trying to decide whether to get a reversal or not. Through God....all things are possible. I had people praying for me all over the world! I truly believe these prayers were answered.
So happy for you! Congratulations!!
Diagnosis: Synchronous transverse rectal carcinomas, 4/15
Chemotherapy and chemo radiation
Resection and temporary colostomy bag 4/16
Ileostomy reversal 7/16
Chemotherapy and chemo radiation
Resection and temporary colostomy bag 4/16
Ileostomy reversal 7/16
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Marylandmaniac
- Posts: 234
- Joined: Wed Jun 29, 2016 6:22 pm
Re: My reversal!
Joannerogers wrote:It's been a long road but after a year, I finally got my reversal. I went in monday...surgery went good...had my bm on tuesday night so I was able to go home today (Wednesday). So far I have not had any accidents! I can tell when I might have to go and I can concentrate on holding it! I'm so pleased! I hope it will continue to be this way. I hope this helps someone else who's getting ready for their reversal or for someone trying to decide whether to get a reversal or not. Through God....all things are possible. I had people praying for me all over the world! I truly believe these prayers were answered.
Thanks Joanne!! Mine is scheduled for April 26. I am going in Friday for a barium enema study to make sure all is good. A little nervous about that because I am not sure what to expect. I have read so many stories of people who have had major issues and it does make me nervous. My surgeon thinks my recovery should go smoothly because I have not had radiation and have only had 10" removed. My reconnection was about 5.5cm from anal verge. Reading your post definitely makes me feel better. Congrats on getting through your journey!
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX
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Joannerogers
- Posts: 260
- Joined: Tue Jun 16, 2015 4:50 pm
Re: My reversal!
Marylandm,
I'm a week out from reversal and am very pleased with my results. I do have clustering but I have control and that was my worry.
They say it's a easy surgery but I've had more pain with this one than any of the other ones. I think because I won't take the opioid pain killer because of constipation. The hospital gave me a binder to wear and that helps with the pain and I take aleve
or Tylenol . Those two combined seem to work fairly well.
I'm so glad I decided to do this! I was like you and many others...worried about control..but so far I've had no trouble other than frequency and I've not changed my diet at all!
Good luck to you! I wish you all the best! I'll be watching for updates from you after your surgery!
I'm a week out from reversal and am very pleased with my results. I do have clustering but I have control and that was my worry.
They say it's a easy surgery but I've had more pain with this one than any of the other ones. I think because I won't take the opioid pain killer because of constipation. The hospital gave me a binder to wear and that helps with the pain and I take aleve
or Tylenol . Those two combined seem to work fairly well.
I'm so glad I decided to do this! I was like you and many others...worried about control..but so far I've had no trouble other than frequency and I've not changed my diet at all!
Good luck to you! I wish you all the best! I'll be watching for updates from you after your surgery!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Re: My reversal!
Thank you for the information. I'm new to this website and am looking for info on whether or not to have the takedown or keep the ileostomy. Glad to hear it's going well early. Much luck to you.
50 year old father of 2
Rectal cancer, stage T2N1M0
Diagnosed 3/31/16
Started Xeloda and radiation 4/14/16
LAR 7/28/16 with temp ileostomy
Xeloda and Oxaliplatin 9/6/16 through 2/14/17
Rectal cancer, stage T2N1M0
Diagnosed 3/31/16
Started Xeloda and radiation 4/14/16
LAR 7/28/16 with temp ileostomy
Xeloda and Oxaliplatin 9/6/16 through 2/14/17
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