I'm busted

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
LPL
Posts: 343
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: I'm busted

Postby LPL » Sun Jul 16, 2017 6:57 pm

Wonderful news :D
Big congratulations wwroam !!!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

fumaros
Posts: 229
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: I'm busted

Postby fumaros » Sun Jul 16, 2017 7:40 pm

that's great news wwroam. with all you have been through, its good to hear good news
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Ron50
Posts: 639
Joined: Fri Feb 10, 2006 7:04 pm

Re: I'm busted

Postby Ron50 » Mon Jul 17, 2017 1:37 am

Great news Wayne I hope the rad and clean up chemo does its job, Best wishes Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

User avatar
horizon
Posts: 1448
Joined: Tue Apr 12, 2011 10:10 pm

Re: I'm busted

Postby horizon » Mon Jul 17, 2017 12:07 pm

I'm sorry you're going through all of this. Life truly isn't fair. Sending good thoughts your way.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 6 years NED). Is this real life?

User avatar
wwroam
Posts: 739
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Mon Sep 18, 2017 3:02 pm

I finished my 30th radiation yesterday and my 6th Carbotaxol the previous week.
All said it wasn't too bad. Not as bad as the Gemcitibine in the first treatment. Now I start the follow ups. The medical oncologist starts Monday next week and the radiation oncologist in mid-December ( after 3 months). I'm not so naieve as to think that this is all I have to do. NSCLC is notoriously hard to shake off.
sandy, my SIL finishes her breast cancer chemo today. She's had a much harder run of it. First very low neutrophils and then persistent UTIs.
All the best to everyone. Keep on keeping on.
Wayne
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

DarknessEmbraced
Posts: 2901
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm busted

Postby DarknessEmbraced » Mon Sep 18, 2017 3:59 pm

Congratulations on finishing your 30th radiation and 6th Carbotaxol!*hugs* I'm glad that your treatment went well! I hope things get easier for your SIL soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Ron50
Posts: 639
Joined: Fri Feb 10, 2006 7:04 pm

Re: I'm busted

Postby Ron50 » Mon Sep 18, 2017 4:10 pm

G'day Wayne,
Sounds like they are treating you fairly aggressively, I hope it is doing its job. I had a scope in April. Four polyps from 4 mm to 11mm developed in the last three years. I had to have some internal staples for the largest. No cancer but some mild displaysia in the larger ones. My type 2 diabetes has decided to ramp up . My HbA1c has been steady at around 48 for years but the last test it jumped to 73. Nothing in my lifestyle has changed I suspect it may be the occasional hit of prednisone I have been prescribed to curb auto-immune hepatitis. I'm still on cyclosporine twice a day for auto-immune nephrotic syndrome of the kidneys. I am still working but it is betting harder. All the best Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Mercy110
Posts: 76
Joined: Wed Aug 16, 2017 12:13 am

Re: I'm busted

Postby Mercy110 » Thu Sep 21, 2017 11:00 am

I am so sorry to hear that. But reading your updates, you are truly a warrior. I hope all your family members are getting well v soon. Pray for you all.
Daughter of Mum age 56, NRAS-mutate Q61R
2017-05: Surgery done. Temporary stoma. Path: T4N1M0. Stage3C. Chemo - Xeloda. Rejected radio. CEA: 7.3
2017-08: CEA: 8.0 (1st) CEA: 9.8 (2nd) CT Scan: Multiple lung nodules. Stage4.
Start from 2017-09: Chemo - FOLFOX + Avastin, 85% for serious diarrhea CEA: 7.0, 4.7 (10/10), 3.7 (11/10), 2.9 (12/3), 2.2 (12/21), 2.4 (01/09)
2017-11: Stable Multiple Lung Nodules from CT

WISH ALL MIGHTY GOD HEALS MUM WITH HIS MIRACLE

User avatar
barbara jayne
Posts: 753
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: I'm busted

Postby barbara jayne » Fri Sep 22, 2017 3:10 pm

Good to hear from you Wayne, sounds like you've had a very rough time of it lately, stay strong, hugs and best wishes to you.
Nice to hear an update from you too Ron, stay healthy best wishes my friends :wink:
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
10 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

User avatar
wwroam
Posts: 739
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Tue Jan 23, 2018 3:47 am

Well I'm still plodding along. My haemoglobin is back to normal so I'm not as tired as I had been.
Back in August I treated myself to a new car. A BMW M240i. An insane little beast. Unfortunately on Oct 2nd I wrote it off and nearly did the same to myself. Ten days flat on my back with an L4 fracture in the Gold Coast hospital. Discharged with scripts for Targin and Endone ( both Oxycodone). That stuff is dangerous. My back still aches but week on week its improving. By December I had improved enough for a brief Hawaiin vacation.
The SIL,Sandy, is bouncing back. Her and hubby have bought a florist shop down at Southport so she has confidence in the future.
A negative is that in December, the wife of my business partner has been found to have spots on her lungs ( she also had breast cancer in 2013 ). She's started chemo but her husband doesn't know what sort. He can be pretty useless in that respect.
I'm relieved that 2017 is over. For me it was pretty terrible.
Best wishes to all, especially Ron for hitting that really big milestone.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

Ron50
Posts: 639
Joined: Fri Feb 10, 2006 7:04 pm

Re: I'm busted

Postby Ron50 » Thu Jan 25, 2018 7:42 am

G'day Wayne,
Sorry to hear that you had an accident but glad to see that you survived it. I agree on targin I was on 80 mg for over two years, Dreadful stuff and the naloxone did not stop opiate induced constipation with me. Every time I took a dose I took two coloxyl and two dulcolax. I decided To get off it. It took 32 weeks of slow reduction. Never again. Now I'm on warfarin. I've got some mild problems with auto immune hep. Warfarin acts on the vit k receptors in the liver that produces the enzyme for blood clotting. I am having trouble getting my clotting factor down to 2.5 , it has been up to 5.2. Any higher and I probably would have needed vit k injections. I was dxed in er after I collapsed at home just before new year. I thought it was vertigo but they think it may have been a slight heart attack . I have been dxed with atrial fib and er referred me to the cardiac clinic at Kawana university hospital. They said it would take three months but I was surprised to get an appointment for next Tuesday. I'm seeing the head cardiac neurologist. He mainly does pacemakers, defibs and ablations. I sometimes wonder how many things have to go wrong before you stop working. They cannot say that the pair of us are not survivors. May we both continue to survive as long as we can. Hope 2018 starts to improve, Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

User avatar
barbara jayne
Posts: 753
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: I'm busted

Postby barbara jayne » Tue Feb 06, 2018 5:53 am

Hey guys,
Sorry to hear about your accident Wayne, but so glad you are recovering now though,
and Ron too good to hear from you, you two are one tough pair :) .....
I passed my 10 yr point in January..... yay ! I’m catching you up Ron lol
Look after yourselves guys, stay well both !
Barbs x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
10 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: AussieAssCancer, Beloved fiancée and 42 guests