I'm busted

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pantufla
Posts: 112
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: I'm busted

Postby pantufla » Tue Apr 11, 2017 11:06 pm

I'm so sorry.
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
Lynch negative.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm."
CEA 0.5

michelle c
Posts: 1845
Joined: Wed Dec 02, 2009 3:58 am

Re: I'm busted

Postby michelle c » Wed Apr 12, 2017 2:49 am

I'm so sorry for all you've gone through in recent times :( Deepest sympathy on the sad loss of your dear Christine and SIL Kathleen :cry: Love and best wishes to you and Sandy xx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

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barbara jayne
Posts: 752
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: I'm busted

Postby barbara jayne » Tue Apr 18, 2017 5:19 pm

Oh Wayne,
Just read this post, can't believe how many of your loved ones have been affected by cancer, so very sorry that you lost your beloved Christine....
Wishing you well, hope the new chemo regime is not too brutal on you,
Sending you big hugs & strength, we're all here for you & also always on FB ...
Wish I could say something to help .....
Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
9 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

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wwroam
Posts: 738
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Tue Apr 18, 2017 6:18 pm

Thanks all for the well wishes.
Today is day 1 of my first cycle of GemCarb.
I had a meeting with my new Oncologist on Monday and he certainly is thorough. Basicly he explained why he has chosen this path, taking into account the amount of chemo that I have already had, and the state of my kidneys.
I've had a look around for a NSCLC forum without much success. The forums exist but the activity level is low.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

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LPL
Posts: 300
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: I'm busted

Postby LPL » Sat May 27, 2017 6:17 am

Hi wwroam,
I hope your treatment is going well and is kind to you!
You wrote:
I've had a look around for a NSCLC forum without much success. The forums exist but the activity level is low.

Have you looked at Inspire?
Here is a link https://www.inspire.com/groups/american ... =553914672
I belive this section for Lungcancer includes a very active group of people. At least that was my experience 1-2 years ago when I read there a lot due to a friend having been diagnosed with NSCLC.
Kind Regards /L
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Joannerogers
Posts: 249
Joined: Tue Jun 16, 2015 4:50 pm

Re: I'm busted

Postby Joannerogers » Sat May 27, 2017 7:23 pm

Sucks news...stay focused! Get your game on!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

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wwroam
Posts: 738
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Mon May 29, 2017 3:12 am

Lots of activity since my last post.
I've found a lung cancer home that I'm comfortable with.
I've now completed 2 cycles of GemCarb with a third commencing on Wednesday. No side affects at all.
I had a Ct scan on the 18th for review by the Lung Panel. last Tuesday.
I had a follow up with my onc today and the result was beyond my expectations. Significant tumour shrinkage , enough to make me a radiation candidate. Those magic words "curative intent",were mentioned.
Unfortunately Sandy hasn't had such an easy run. Two cycles of chemo and two hospital admissions. If only she would learn to sit still and give her body a chance. In the meantime keep on with the Neulasta.

Hope to all
Wayne
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

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LPL
Posts: 300
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: I'm busted

Postby LPL » Mon May 29, 2017 4:28 am

Hi wwroam/Wayne,
Wonderful to hear such good news for you :)
Hoping it will get better for your SIL Sandy too!
Kind Regards /L
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

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wwroam
Posts: 738
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Sun Jun 25, 2017 7:01 pm

Yesterday was my 10th Colon Cancer anniversary.
Still free of that cancer and still doing battle with NSCLung Cancer.
During the 3rd round of GemCarb I found out what low red blood cells are like. No breath and very tired.
I've now done week 1 of my initial 4th cycle of chemo which has now been extended to 5 +. Today I finally get my new Portacath. Not before time. I'm out of veins from the canula.

All the best
Wayne.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

Ron50
Posts: 621
Joined: Fri Feb 10, 2006 7:04 pm

Re: I'm busted

Postby Ron50 » Mon Jun 26, 2017 1:43 am

Good luck mate , just keep swinging, Ron..
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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Bev G
Posts: 5847
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: I'm busted

Postby Bev G » Mon Jun 26, 2017 11:30 pm

Hi Wayne,

It's almost impossible to even imagine everything you have been going through. I hope the NSCLC treatment continues to kick butt. I'm so glad the side effects aren't too bad. WIshing you all the best.


(((WAYNE)))

Best regards,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

fumaros
Posts: 212
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: I'm busted

Postby fumaros » Tue Jun 27, 2017 8:03 am

Congratulations on the 10th Anniversary. I know you are in the midst of another battle, I hope you kick this NSCLC. Stay strong always.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 7/17 - NED

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: I'm busted

Postby Maia » Tue Jun 27, 2017 8:11 am

Wayne, congratulations on your 10 mark!

Just a thought... has you been tested for receiving immunotherapy instead of chemotherapy for NSCLC?
https://www.medianet.com.au/releases/127433/
SYDNEY, Australia, 8 March 2017 – Australians with a deadly form of lung cancer can now bypass chemotherapy to receive medicine that activates the body’s immune system to fight cancer cells.

MSD today announced that its cancer fighting immunotherapy KEYTRUDA® (pembrolizumab) has been approved for use prior to, as well as following, chemotherapy to treat advanced non-small cell lung cancer in patients with a protein known as programmed cell death ligand 1 (PD-L1)*. For this immunotherapy, each patient needs to be tested to determine their suitability for the treatment.*

Until now, this treatment had only been available for patients with advanced melanoma.

“The great news is that KEYTRUDA can now be prescribed to previously untreated lung cancer patients, as well those whose cancer has spread after chemotherapy,” said Associate Professor Tom John, from The Olivia Newton-John Cancer Centre.

“This marks the first time that Australians with lung cancer can receive an immunotherapy without having first failed chemotherapy,” he said.

The approval of KEYTRUDA for use in previously untreated lung cancer patients comes five months after the publication of a landmark study that compared the immuno-oncology therapy to traditional chemotherapy, involving Australian doctors – including Associate Professor John – and patients.

http://www.sbs.com.au/news/article/2016 ... -treatment
http://www.ascopost.com/issues/february ... ng-cancer/

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CRguy
Posts: 9286
Joined: Sun Feb 10, 2008 6:00 pm

Re: I'm busted

Postby CRguy » Fri Jun 30, 2017 3:14 pm

Just to add onto Maia's post, a couple of interviews from ASCO 2017

Upfront PD-1 Inhibitor Treatment for NSCLC: A New Paradigm

Critical Issues in Thoracic Oncology

Best wishes buddy
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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wwroam
Posts: 738
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Sun Jul 16, 2017 5:16 pm

There will be no 5th round of GemCarb. It isn't necessary.
I will be going straight into Radiation + Carboplatin + Taxol.
After the 4th round I had a PET scan. The primary is now smaller than 1 cm and the 2 lymph nodes are cancer free. An "excellent response".
I had 4 units of blood last week and it is really kicking in.
I think I will be around for a while yet.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15


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