I'm busted

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pantufla
Posts: 110
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: I'm busted

Postby pantufla » Tue Apr 11, 2017 11:06 pm

I'm so sorry.
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
Lynch negative.
10/3/16 CT scan clear.

michelle c
Posts: 1832
Joined: Wed Dec 02, 2009 3:58 am

Re: I'm busted

Postby michelle c » Wed Apr 12, 2017 2:49 am

I'm so sorry for all you've gone through in recent times :( Deepest sympathy on the sad loss of your dear Christine and SIL Kathleen :cry: Love and best wishes to you and Sandy xx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

User avatar
barbara jayne
Posts: 750
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: I'm busted

Postby barbara jayne » Tue Apr 18, 2017 5:19 pm

Oh Wayne,
Just read this post, can't believe how many of your loved ones have been affected by cancer, so very sorry that you lost your beloved Christine....
Wishing you well, hope the new chemo regime is not too brutal on you,
Sending you big hugs & strength, we're all here for you & also always on FB ...
Wish I could say something to help .....
Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
9 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

User avatar
wwroam
Posts: 729
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Tue Apr 18, 2017 6:18 pm

Thanks all for the well wishes.
Today is day 1 of my first cycle of GemCarb.
I had a meeting with my new Oncologist on Monday and he certainly is thorough. Basicly he explained why he has chosen this path, taking into account the amount of chemo that I have already had, and the state of my kidneys.
I've had a look around for a NSCLC forum without much success. The forums exist but the activity level is low.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

User avatar
LPL
Posts: 224
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: I'm busted

Postby LPL » Sat May 27, 2017 6:17 am

Hi wwroam,
I hope your treatment is going well and is kind to you!
You wrote:
I've had a look around for a NSCLC forum without much success. The forums exist but the activity level is low.

Have you looked at Inspire?
Here is a link https://www.inspire.com/groups/american ... =553914672
I belive this section for Lungcancer includes a very active group of people. At least that was my experience 1-2 years ago when I read there a lot due to a friend having been diagnosed with NSCLC.
Kind Regards /L
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Joannerogers
Posts: 229
Joined: Tue Jun 16, 2015 4:50 pm

Re: I'm busted

Postby Joannerogers » Sat May 27, 2017 7:23 pm

Sucks news...stay focused! Get your game on!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

User avatar
wwroam
Posts: 729
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Mon May 29, 2017 3:12 am

Lots of activity since my last post.
I've found a lung cancer home that I'm comfortable with.
I've now completed 2 cycles of GemCarb with a third commencing on Wednesday. No side affects at all.
I had a Ct scan on the 18th for review by the Lung Panel. last Tuesday.
I had a follow up with my onc today and the result was beyond my expectations. Significant tumour shrinkage , enough to make me a radiation candidate. Those magic words "curative intent",were mentioned.
Unfortunately Sandy hasn't had such an easy run. Two cycles of chemo and two hospital admissions. If only she would learn to sit still and give her body a chance. In the meantime keep on with the Neulasta.

Hope to all
Wayne
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

User avatar
LPL
Posts: 224
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: I'm busted

Postby LPL » Mon May 29, 2017 4:28 am

Hi wwroam/Wayne,
Wonderful to hear such good news for you :)
Hoping it will get better for your SIL Sandy too!
Kind Regards /L
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets


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