I'm busted

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wwroam
Posts: 738
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Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
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I'm busted

Postby wwroam » Fri Mar 24, 2017 6:19 am

Jan 26 SIL #1 Kathleen passed away from lung cancer
Feb 26 My beloved Christine passed away away from Stage 4 Colon Cancer . 41 cycles of chemo in 23 months . what a fighter
Feb 26 SIL #2 Sandy sdcharged from hospital after mastectomy for breast cancer
Mar 24 I was diagnosed with Lung Cancer. A new primary.

I think my head will explode.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

JJ2212
Posts: 268
Joined: Mon Oct 14, 2013 3:54 pm
Location: Montréal, QC

Re: I'm busted

Postby JJ2212 » Fri Mar 24, 2017 7:44 am

I'm so sorry for your pain. Words are inadequate and I struggle to find anything to say that might bring you comfort. Take care.

Janie
Rectal cancer dx 04/13 @ 42, MSS, KRAS positive
T3N2M1 (1 lung met)
5 weeks xeloda+radiation finished 07/13
APR 9/13 (permanent colostomy), 27/31 nodes positive :-(
12 rounds of FOLFOX 04/14
Lung met growth 11/14
26 cycles Regorafenib (Stivarga) from 11/15 to 01/17
New lung met and chest/neck lymph nodes 01/17
1 cycle Folfiri

Ron50
Posts: 620
Joined: Fri Feb 10, 2006 7:04 pm

Re: I'm busted

Postby Ron50 » Fri Mar 24, 2017 7:52 am

I am so sorry mate. That is one serious load of crap to deal with. Christine did her level best to stay with you, two years and all that chemo,it does not seem fair. Now your new diagnosis. I hope it is treatable and you keep on surviving until life can give you a break and you can learn to live and find some happiness again. I just wish I knew the words to help you get there. Hugs ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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Maia
Posts: 2432
Joined: Fri Aug 24, 2012 8:00 am

Re: I'm busted

Postby Maia » Fri Mar 24, 2017 8:57 am

I'm so sorry. Words are inadequate.
Let's hope this new primary treatment is more gentle than any thing that you have had or witnessed before; things are changing, slowly. And might this new treatment take care of your previous diagnosis. Those who you loved (and love) are right in your heart, to give you strength, to ease your pain.

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Bev G
Posts: 5840
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: I'm busted

Postby Bev G » Fri Mar 24, 2017 10:16 am

I'm terribly sorry to hear this news. You have sure been through a lot. I hope the new diagnosis will be treatable, and with as little pain as possible.

Warmest best wishes to you.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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peanut_8
Posts: 2132
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: I'm busted

Postby peanut_8 » Fri Mar 24, 2017 11:00 am

What a devastating series of events. So sorry for the loss of your wife and SIL. Hoping you find an effective treatment for your lung cancer.
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

jhocno197
Posts: 809
Joined: Mon May 11, 2015 9:33 pm

Re: I'm busted

Postby jhocno197 » Fri Mar 24, 2017 11:58 am

:(
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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CRguy
Posts: 9220
Joined: Sun Feb 10, 2008 6:00 pm

Re: I'm busted

Postby CRguy » Fri Mar 24, 2017 5:55 pm

Major sucknitude on all that news buddy.
Sending you MEGA +++++ Vibes moving forward

" Don't retreat ... RELOAD ! " and kick some ass along the way

Harmony
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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LPL
Posts: 287
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: I'm busted

Postby LPL » Fri Mar 24, 2017 7:33 pm

wwroam,
What is happening in your life?
This is too much - it is not fair!!!!!
Sending You all the good vibration that I can find for a good outcome :!:
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

fumaros
Posts: 200
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: I'm busted

Postby fumaros » Sun Mar 26, 2017 8:30 am

wow :( i dont know any words that qualify to make this okay. :( :( :(
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 7/17 - NED

Lee
Posts: 5161
Joined: Sun Apr 16, 2006 4:09 pm

Re: I'm busted

Postby Lee » Sun Mar 26, 2017 2:19 pm

(((wwroam)))

WOW, I am so sorry for all that has happened to you in such a short period of time. My condolences to you and your family.

I hope the Dr were able to diagnose your new cancer early.

All the best to you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

DarknessEmbraced
Posts: 2785
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm busted

Postby DarknessEmbraced » Sun Mar 26, 2017 2:33 pm

I'm so sorry for the loss of Kathleen and Christine!*hugs* I'm sorry for your diagnosis and for Sandy's as well!*hugs* I'm sorry you're going through so much!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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wwroam
Posts: 738
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: I'm busted

Postby wwroam » Tue Apr 11, 2017 1:09 am

A fair bit has happened since my post.
I've had an EBUS biopsy , and got preliminary results within 48 hours. Didn't read so good.
Today I had a Lung Clinic Panel meeting.
I will have a more extensive appointment with my new Oncologist on Easter Monday. The punchline is that I will do 3 months of GemCarbo chemo ( Carboplatin and Gemcitabine) and review after that. I won't need another portocath and GemCarbo is not as harsh as Folfox.
And Sandy has started her chemo and is doing fine.

Wayne
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

DarknessEmbraced
Posts: 2785
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm busted

Postby DarknessEmbraced » Tue Apr 11, 2017 1:06 pm

I'm glad Sandy's chemo is going well and hope yours goes well too!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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ktwmn
Posts: 335
Joined: Tue Aug 02, 2011 9:41 am

Re: I'm busted

Postby ktwmn » Tue Apr 11, 2017 4:35 pm

You have had more than your share of bad luck. It is so unfair! Now it sounds like you have a plan, one that is doable and with less side effects than Folfox or Folfiri. Hang in there and keep up the fight. We are here whenever you need to talk.
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin


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