Postby mhf1986 » Sat Apr 29, 2017 6:25 pm
Just saying Hi to Sarah again. I think Onc is going to remove DH's oxy on May 17. While the symptoms haven't been horrible, they are getting more noticeable, especially the painful hands and slightly numb feet. The cold sensitivity is bad, he wears gloves and drinks only room temperature things. Onc said he doesn't want it to get worse and become non-reversable. So DH made it thru 6 full rounds of oxy and will continue with the 5FU+Avastian.
However, CT scan is May 12 and we make seek alternative measures at that point. CEA is way down which makes us think tumors are still shrinking and there might be other ideas out there.
Hugs to all,
Melissa
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace