Thanks a lot for your replies and kind words. Happy to know some of us do achieve what seemed to be extremely rare. I really need those stories. I need hope to cling to. This is so tough.
Right now my mom is on some sort of a break before we start Xeliri in early April. She stayed in the hospital for a few days for thoracentesis and pleurodesis to relieve symptoms. PET scans done 2 months ago showed no visible tumors but I have really been worried about the possible progression during these few months off chemo. She is back home today, sleeping really well, and alive and kicking. We try to be positive, eat and sleep well, to prepare for another battle ahead.
I hope all the best for you.
Supporter to my mom (64 yr)
2012: DX Stage I, rectal cancer; resection and colostomy, no chemo
5/16: DX Stage III, mets found; right groin lymph node and soft tissue nodules
5-6/16: Radiation + Xeloda
7/16: DX Stage IV, pleural effusion; cancer cells found in fluid, NO visible tumour on scan
7-12/16: Xelox + Avastin X 6 rounds
1/17: Clean PET scan, NED
2/17: pleural effusion; cancer cells found in fluid AGAIN
3/17: Pleural tap + pleurodesis scheduled; chemo(Xeliri) planned for further progression