crook as a chook......update

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Maggie Nell
Posts: 655
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

crook as a chook......update

Postby Maggie Nell » Thu Mar 16, 2017 9:03 pm

I do not know what I have caught, but I feel like I am going to reverse "blood eagle"
myself with coughing my lungs up and I can barely talk....and it's my birthday!!

Not! Happy! Jan!

:( :|
Last edited by Maggie Nell on Tue Mar 21, 2017 1:27 am, edited 1 time in total.
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

KElizabeth
Posts: 386
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: crook as a chook......

Postby KElizabeth » Thu Mar 16, 2017 9:17 pm

Definitely no fun to be sick on your birthday!
Why do these things always pick the worst time to hit? I hope you feel better soon.

Elizabeth
Female age 38- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 -current
CEA at recurrence:10.1/august, 2015
CEA: 1.9 February, 2016
CEA: 16.4 March 2017
CEA: 90.1 October 2017

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: crook as a chook......

Postby Lee » Thu Mar 16, 2017 9:46 pm

So sorry, hope you are feeling better soon. You must be a Pisces, my mother's B-Day is this Saturday.

Thinking of you, hope you are feeling better soon,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Steph20021
Posts: 492
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: crook as a chook......

Postby Steph20021 » Fri Mar 17, 2017 1:07 am

Don't let it get to pneumonia, that would really suck. Be well soon.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Currently stable suce Aug/16- on folfiri

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SEWHAPPY
Posts: 86
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Re: crook as a chook......

Postby SEWHAPPY » Fri Mar 17, 2017 4:12 pm

Sorry you feel yucky! I think you get a birthday rain check - celebrate next month instead!!!
Female age 51.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.

fumaros
Posts: 214
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: crook as a chook......

Postby fumaros » Fri Mar 17, 2017 4:57 pm

So sorry you are sick on your birthday. I had the worst flu about a week ago, and it was my birthday. First time i have been sick on my birthday. I had to cancel a trip because of it. Feel better, it will pass soon, and then the cough will pass a bit later.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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juliej
Posts: 2739
Joined: Thu Aug 05, 2010 12:59 pm

Re: crook as a chook......

Postby juliej » Fri Mar 17, 2017 5:00 pm

I suggest a good Irish whiskey (preferably Jameson) mixed with ginger, honey and lemon -- and sweat the bugger out! :D
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 10/2/2017, CEA<1

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LPL
Posts: 302
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: crook as a chook......

Postby LPL » Fri Mar 17, 2017 9:33 pm

Hi Maggie Nell,

That does not sound like fun :(

Have you tried Lactoferrin ?
Both hubby & I take that and if we feel an 'infection' coming, we can higher the dose for a few days.
It seams to work quite well for us.

Happy Birthday to You /LPL
P.S. Below - some Lactoferrin reading/references if you or anyone is interested

From (2015) Review Clinical applications of bioactive milk components
https://www.ncbi.nlm.nih.gov/pmc/articl ... rt=classic
"In a recent study, 90 patients who indicated frequent cold symptoms were given human recombinant lactoferrin 600 mg/day or placebo for 90 days. Patients in the lactoferrin treatment group reported a significant reduction in symptom severity and reduced duration of symptoms relative to the control group.[26] "

Diagram (from the review above) illustrating the wide range of applications for bioactive milk compounds in the treatment of human disease. https://www.ncbi.nlm.nih.gov/pmc/articl ... nuv009-F1/ )


From (2014) Study on the Therapeutic Benefit on Lactoferrin in Patients with Colorectal Cancer Receiving Chemotherapy
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4897438/

( 2015) Changes in the paper entitled “Study on the Therapeutic Benefit on Lactoferrin in Patients with Colorectal Cancer Receiving Chemotherapy” are as follows:
Title of Table 4 was changed.
Tables 5 and 6 became one table, currently numbered 5, containing updated information compared to the published paper.
https://www.ncbi.nlm.nih.gov/pmc/articl ... rt=classic )


From (2016) review Lactoferrin from Milk: Nutraceutical and Pharmacological Properties
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5198036/
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

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Maggie Nell
Posts: 655
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: crook as a chook......UPDATE

Postby Maggie Nell » Tue Mar 21, 2017 1:18 am

Thanks Elizabeth, Lee, Steph, Sewhappy, fumaros, JulieJ and LPL for your thoughts and
birthday wishes.

At the moment, waiting on results from blood work and swabs taken from a weird rash I broke out in, just in time
for my doctor's appointment. I look like a sick budgie but feeling a tad better as the antibiotics are kicking in.

Remember_
Sick Budgerigars are Masters of Disguise for as long as possible.
“Sick budgies don’t shout “Help me!!!””

Birds including budgies are masters of disguise when it comes to hiding their illnesses, disabilities and pain.

· This is probably a survival mechanism.
· Obviously sick birds are quickly attacked, killed and eaten in the wild. This especially applies to small birds such as budgies.



Wow....who knew that about budgies? I sure didn't. :shock: I digress.

Had a bit of bleeding so the words 'scoot down the table a bit' are going to be in my near future, when the
persistent cough has gone
because, you know, that brushy thing tickles. ...We're hoping the PR bleeding is just the
same old haemorrhoid and the force of coughing (amazingly I haven't whizzed myself).....and I'm getting linked in with a new oncologist. 8)

Basically, I turned 56 and everything went to the shithouse..........as we aussies say. :roll:
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

AussieAssCancer
Posts: 213
Joined: Sat May 21, 2016 10:16 am

Re: crook as a chook......update

Postby AussieAssCancer » Tue Mar 21, 2017 5:09 am

Well this is fucking shit! Get your ass into gear Maggie, run it off!!

Bummed this fiasco ruined your birthday and hoping for a non-sinister reason for your woes!

GK
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

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LPL
Posts: 302
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: crook as a chook......update

Postby LPL » Tue Mar 21, 2017 4:34 pm

Good to hear that you are "feeling a tad better " Maggi :)
I hope the blood & swab tests will show you are getting the correct & best Antibiotic for this stupid bug.. :evil:
When you feel this has past, you could perhaps chose a new date to Celebrate 'like an alternative birthday' :wink:
I hope your new Oncologist is great.
Kind regards /LPL
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

User avatar
Maggie Nell
Posts: 655
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: crook as a chook......update

Postby Maggie Nell » Tue Mar 21, 2017 8:13 pm

Well, I've just read that in January there was a nasty hacking cough plaguing Britain,
but doctors could do nothing about it and it lasts for weeks.....great, now I feel
like a canary down a mine!
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: crook as a chook......update

Postby DarknessEmbraced » Wed Mar 22, 2017 4:23 pm

I hope you feel better soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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WriterGirl1969
Posts: 453
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: crook as a chook......update

Postby WriterGirl1969 » Wed Mar 22, 2017 8:01 pm

Oh no - that stinks so big time.
Here's hoping the nasty bug monster gets kicked ASAP.
And of course... HAPPY BIRTHDAY!!!
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear
NED at 1 year
“If I can help somebody as I walk along, then my living shall not be in vain.”


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