Post treatment crap-a-lot

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GreenMonkey
Posts: 332
Joined: Wed Jun 12, 2013 5:43 am
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Post treatment crap-a-lot

Postby GreenMonkey » Wed Mar 15, 2017 5:36 pm

Hello Everyone, Green Monkey here...

Trying my best to live a "normal" life post rectal cancer (ileostomy reversed). My quality of life has gone way down due to the need to crap after eating - usually 20 to 30 minutes after a meal. So, I eat healthy but sparingly during the day. My evenings, post dinner, are spent on Chet (the name I gave my bio-bidet). Don't get me wrong, I love Chet, but I need to interact with the world. I can't continue to devote my evenings to Chet. Has anyone else experienced this? When I say "I crap-a-lot" I mean... 10 or 20 or 30 times a day. All small stools, but firm.

Thanks! Shannon aka GreenMonkey
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com

Lee
Posts: 4560
Joined: Sun Apr 16, 2006 4:09 pm

Re: Post treatment crap-a-lot

Postby Lee » Wed Mar 15, 2017 7:24 pm

Some people have found success by doing daily enemas. If you check the search box, I believe tammylane kept a log/thread on her trials of success and failure on this subject. May want to think about it.

I understand your frustration I had that problem as a result of radiation (rectal muscles destroyed). I had 1 hr after eating then was tied to the toilet for the next 2-3 hrs. Many days I had my first meal at 3-4 pm when I knew I was home for the day.

This is drastic, butt I know a few people who did this to get there life back. A permanent colostomy. I have one, my decision and it did give me my life back. I made the decision prior to my surgery to remove my tumor. Have no regrets. Only suggesting it as a last resort.

Good luck, I assume you've tried diet and Imodium to help control this,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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GrouseMan
Posts: 698
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: Post treatment crap-a-lot

Postby GrouseMan » Wed Mar 15, 2017 8:27 pm

Green Monkey - I posted the following in the thread about Checking In: viewtopic.php?f=1&t=53421

But here is a copy here as well because it might be found by other folks with the same issue.

Welcome back Green Monkey - Its been a long time. I was hoping you were doing OK. Liked your post about the bidet at Burning Man. Anyway - as you know they often use atropine to slow things down when you are treated with irinotecan. Atropine is an Anticholinergic of which there are many examples available on the market via prescription. They are used to treat many conditions some of which might interest you - gastrointestinal disorders, such as diarrhea, overactive bladder, and incontinence. They usually prescribe these for COPD, and overactive bladder. Have you talked to your GP about what he may suggest? An over the counter incontinence drug might give you some relief also or at least a start to see if one of these might work. I read that Hyland's EnurAid contains a small amount of belladonna which is also an Anticholinergic, low does might do the trick, or if you can talk your GP into prescribing a prescription one to test the waters maybe?

In the case of colon cancer patients some creative imagination might be necessary. You have probably lost some length of colon. So the whole waste processing apparatus is shortened, less absorption of water from the colon so there is always a likely hood of more diarrhea. Things like Rheaban (contains magnesium aluminium phyllosilicate) and Kaopectate (contains Bismuth Subsalicylate) are adsorbents and may help to bind things up some, but that I don't believe is your problem. You need to slow things down. I assume you have tried Imodium? They sometime give you that in prescription form as Loperamide when you are getting FOLFOX and FOLFIRI. That might help but you likely will need to take more than what the box says. - its a used to treat short bowel syndrome which of course is really what many end up with when they have a colon resection! Loperamide is a different kind of drug than the anticholinergic drugs - its actually an Opioid but is not a narcotic. Usually when you are in CRC treatment they let you take as much of this stuff as you need. You just need to be careful not to put yourself in the opposite situation of constipation. It sort of starts to put your colon to sleep if you will.

Here is a link to Loperamide: https://en.wikipedia.org/wiki/Loperamide

Another to short bowel syndrome: https://en.wikipedia.org/wiki/Short_bowel_syndrome

And another about anticholinergics : https://en.wikipedia.org/wiki/Anticholinergic

Have a frank talk with your GP. He should probably know that the adsorbents are not going to work all that well. But maybe Imodium or one of the anticholinergic agents will.

Good luck too you.

GrouseMan
DW 53 dx Jun 13
CT mets Liver Spleen lung. IVb CEA~110
Jul13 Sig Resct
8/13 FolFox + Avastin 12Tx mild sfx
Ongoing 5-FU Avastin every 3 wks.
CEA: 9/23/13 53 10/21/13 22 12/2/13 8 1/13/14 3.7 8/12/14 2.3 7/2/15 4.0 8/21/15 5.9
7/7/14 CT Can't see the spleen Mets Stable until... CEA up
8/16/15 CT new abdominal spots. Now Iri, 5-FU, Avastin every other week.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen

Jacques
Posts: 301
Joined: Sun Dec 28, 2014 10:38 am

Re: Post treatment crap-a-lot

Postby Jacques » Thu Mar 16, 2017 2:13 pm

DX(2012): RC
Stage II, T4 N0 M0 L0 PN1 H0 D0 P0 I1
LAR
MSI: not tested
Chimio-radiothérapie
Chimiothérapie adjuvante : capécitabine + oxaliplatine
CEA < 1.0
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