Stable scan

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aja1121
Posts: 214
Joined: Sat Jun 28, 2014 5:12 pm

Stable scan

Postby aja1121 » Tue Mar 14, 2017 8:58 pm

Husband's previous CT in November showed six new lung nodules, all less than 1cm, which all appeared while he was on Xilonix trial. He stopped trial and started Xeloda & Avastin that week. CT scan today showed decrease in some of the nodules and no other significant changes. Still planning a trip to Mayo next week to inquire about BBI608 trial, but very glad this seems to be controlling growth for now...
05/23/14 DH dx Stage 3B rectal ca (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died
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Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Stable scan

Postby Steph20021 » Tue Mar 14, 2017 9:20 pm

Happy to read your good news! Goodluck!
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
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Ratepo
Posts: 71
Joined: Thu Oct 10, 2013 1:56 am

Re: Stable scan

Postby Ratepo » Wed Mar 15, 2017 2:02 am

Very glad to hear! A huge relief I can imagine after the previous growth. Did they mention anything about the recurrent local cancer?
Father dx 10/12 rectal 4a
11/12 3 liver mets resected
01/13 colostomy
07/13 scan: 1 liver met, op. failed: multiple discovered, start xelox
12/13 mets shrink (kras mut.)
01/14 liver op new hospital: 2 mets removed others disappeared
05/14 & 09/14 NED
01/15 CEA rise to 5
05/15 local reccurence - rad + Xeloda
10/15 op. failed unremovable mets lower pelvis
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fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:
Contact fumaros

Re: Stable scan

Postby fumaros » Wed Mar 15, 2017 7:03 am

That's good news. Also, you have a treatment that works to fall back luck as a you try for new a trial. I pray it all works out for you.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED
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aja1121
Posts: 214
Joined: Sat Jun 28, 2014 5:12 pm

Re: Stable scan

Postby aja1121 » Wed Mar 15, 2017 9:34 am

Thank you all.

Ratepo, I don't have a copy of the scan report yet (oncologist called us with the findings as soon as it was available to him) but I hope to pick up today. Usually the reports say "soft tissue changes in the presacral area consistent with residual malignancy" or something like that. Because of all the surgeries/radiation/scar tissue in his pelvis, and the irregular shape of the remaining cancer, it's really only obvious on PET scans because it lights up.
05/23/14 DH dx Stage 3B rectal ca (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died
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