Postby mhf1986 » Sat Mar 18, 2017 6:43 pm
Sarah! You still around? I wanted to share that DH's latest CEA has fallen to 14. Yes, FOURTEEN. It was 114 in September right before surgery and has been going down since he started FOLFOX in late November. It was 31 in February.
We had a long talk tonight about HAI, surgery, and such. Thinking about various options. He hates the idea of surgery (the two surgeries back in October were a disaster, complete with sepsis and collapsed lung) but is willing at least to consider it. So will be asking the Onc on Tuesday when he plans on another CT scan and then decide next steps. Best guess is May.
Does anyone out there know if HAI is only done at MSK? We are only 3 hours from there via train so that's an obvious choice but just wondering. IF MSK is the only place, is because of surgeons, or patents, or what?
Sending you some hugs and some hope,
Melissa
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace