My Beloved is gone

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jhocno197
Posts: 811
Joined: Mon May 11, 2015 9:33 pm

My Beloved is gone

Postby jhocno197 » Fri Mar 10, 2017 4:56 pm

Erick died during a thunderstorm this morning. I am so thankful for the storm, because I had been sleeping & it woke me up. Because of that I noticed that his breathing started slowing and I was able to hold his hand for his last few breaths before he left this world.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

aja1121
Posts: 202
Joined: Sat Jun 28, 2014 5:12 pm

Re: My Beloved is gone

Postby aja1121 » Fri Mar 10, 2017 5:14 pm

I am so, so sorry. Sending you love and light.
DH dx Stage 3B rectal ca 5/23/14 (age 41) from Mpls, MN
6/14 Xeloda + 30 rad
10/14 LAR/ileo, all 12 nodes clean
12/14-04/15 FOLFOX x 10
05/15 VATS, single lung met
06/15 ileo reversal, 09/15 local recurrence, 10/15 permanent colostomy
11/15 FOLFIRI x 4, 01/16 major growth, 10 more rad
02/16 curative resection failed, tumor debulked
03/16 FOLFOX x 4
11/16 Xeloda/Avastin until progression seen 08/17
09/17 start NCT02024607 (BBI608 + FOLFIRI arm)

AussieAssCancer
Posts: 219
Joined: Sat May 21, 2016 10:16 am

Re: My Beloved is gone

Postby AussieAssCancer » Fri Mar 10, 2017 5:43 pm

I'm so very sorry. I'm glad however that you were able to be with him and I know that would have meant so much to him as well.

You are in my thoughts.

Geoff
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

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chrissyrice
Posts: 1151
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: My Beloved is gone

Postby chrissyrice » Fri Mar 10, 2017 6:37 pm

I also saw your post on FB too. I am so sorry for your loss.

I live near you. I am in Buford GA and the storm was so amazing ... it woke me up too.

The lightning was a beautiful show of his presence leaving this world behind.

Please contact me if you need to talk or help just send me a pm here or an im on FB

Chrissy
Dx 10-31-09 Surgery 12-1-09 Sigmoid Colon Stage IIIb; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU & Leucovorin;12-16-2010 PET/CT Scan Cancer Free;7-05-2012 CT Scan NED 2 years;10-13-2013 NED 3 yrs; 08-01-2014 NED 4 yrs; 06-30-2015 Stage 4 iliac lymph node(s) 08-11-2015 Surgery 3 cm tumor and iliac artery graft done. Positive margins in the abdominal aorta, No chemo. 03-16-2016 CT Scan Stable,06-16-2016 CT Scan Stable,09-21-2016 CT Scan Stable,12-2016 Stable,03-31-17 Stable,
Recurrence 6-30-17

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: My Beloved is gone

Postby DarknessEmbraced » Fri Mar 10, 2017 7:13 pm

I'm so very sorry for the loss of your husband!*hugs* My deepest condolences.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Lee
Posts: 5293
Joined: Sun Apr 16, 2006 4:09 pm

Re: My Beloved is gone

Postby Lee » Fri Mar 10, 2017 7:40 pm

I am so sorry for your loss. Treasure the memories you both made together. That storm does sound like a blessing.

(((jhocno197)))

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

lpas
Posts: 991
Joined: Wed Nov 19, 2014 11:11 pm

Re: My Beloved is gone

Postby lpas » Fri Mar 10, 2017 8:07 pm

Oh, no. I'm so sorry. :(
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX, Celebrex & many supplements
3/16 Ovarian mass removed. Benign fibroid
9/16 clean colonoscopy
3/17 clean CT
Ongoing Celebrex, cimetidine & other carefully-targeted supplements
Post-chemo CEA 3.0, 2.5, 2.3, 2.0, 1.6, 1.3, 1.8, 2.1, 1.8, 2.0, 1.8, 1.9, 1.7, 1.5, 1.6, 1.5, 1.4, 1.4, 1.3, 1.3, 1.6, 1.6, 1.3
Mom to a 3 & 6yo

LoraCF
Posts: 9
Joined: Sun Jan 15, 2017 10:58 pm

Re: My Beloved is gone

Postby LoraCF » Fri Mar 10, 2017 8:55 pm

I'm so sorry to hear about your terrible loss.

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mypinkheaven
Posts: 428
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: My Beloved is gone

Postby mypinkheaven » Fri Mar 10, 2017 10:39 pm

I'm so sorry. I'm glad you were with him.
MSS, KRAS Wild
9/2012 Colon Cancer IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Metastasis to uterus. Hysterectomy
2/16 Pelvic radiation - 25, brachytherapy - 3.
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules less than 5 mm.
8/16 CT Nodules still present. Most stable. Some growth
10/16 CT Same ^. Onc recommends no tx :evil:
11/16 Transfer to UCSD Moores Cancer Center
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus

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Bev G
Posts: 5847
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: My Beloved is gone

Postby Bev G » Fri Mar 10, 2017 10:50 pm

I'mm so sorry to read your very sad news, and am glad you were with him. May God rest both of your souls.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Wonderfullymade
Posts: 119
Joined: Tue Jan 12, 2016 4:33 pm

Re: My Beloved is gone

Postby Wonderfullymade » Sat Mar 11, 2017 9:01 am

I am also sorry to hear about your loss and will keep you in prayer.
Wonderfullymade
DX 3/2015 53
Stage IVa CC w/liver met
BRAF/KRAS wild type MSI-High Lynch?
Folfox 3 cycles
5/2015 ER for subtotal colectomomy due to perforated colon, ovary removed
Folfuri/Pantiumumab 5 cycles
8/2015 liver resection, gallbladder removed and new LN
10/2015 CT scan new nodes
10/2015 Pembro started CEA 2.2
5/2017 stable lung things, coltis, lymph nodes stable cea 1/2017 1.1

KElizabeth
Posts: 390
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: My Beloved is gone

Postby KElizabeth » Sat Mar 11, 2017 12:03 pm

Very sorry to hear this. Warm thoughts are being sent your way.
Female age 38- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 -current
CEA at recurrence:10.1/august, 2015
CEA: 1.9 February, 2016
CEA: 16.4 March 2017
CEA: 90.1 October 2017

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bitchslapped
Posts: 1358
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: My Beloved is gone

Postby bitchslapped » Sat Mar 11, 2017 2:13 pm

My sympathies to you for the loss of your beloved husband. Those last moments you were given w/your husband will help carry you.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: My Beloved is gone

Postby Maia » Sat Mar 11, 2017 2:46 pm

I'm so sorry, J.. What a blessing you were able to be together, hold his hand. He departed surrounded with your love --that, that is comforting. May you be always supported by the love you both shared and share.

CLD
Posts: 177
Joined: Fri Mar 27, 2015 7:16 pm

Re: My Beloved is gone

Postby CLD » Sat Mar 11, 2017 5:06 pm

I have been following your story. I'm soo sorry for your loss. May your husband rest in peace and may you find comfort amongst family and friends in the coming days.
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage III CC of Sigmoid Colon (by surgeon) (Oncologist says Stage iv)
Satellite tumor deposit in mesentary
13/24 lymph nodes involved
CEA at dx: 3
MSS
Low Grade / Moderately Differentiated
Clear scans so far!!! (Most recent Nov 2017)
Started FOLFOX Feb 2015 / Finished Aug 2015


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