No more scans, feeling scared

Please feel free to read, share your thoughts, your stories and connect with others!
Posts: 35
Joined: Sat Nov 12, 2016 10:08 pm

Re: No more scans, feeling scared

Postby mct » Thu Mar 09, 2017 6:06 pm

I agree with others that scans for 5 yrs are the norm based on everything I've read and I will certainly be insisting on this. You have to be your own best advocate and insist when necessary. I've learned this because I had breast cancer 7 yrs ago and my oncologist did not believe in 'unnecessary' scans, so I had none. I can't help but think that had he ordered a full scan that my rectal cancer would have been diagnosed much sooner.
Breast cancer 2009
Rectal cancer Nov 2016, T3N0M0, CEA - 10.3
28 days rads/Xeloda - finished Jan 19 2017
Surgery ULAR Mar 17, 2017
Anastomotic leak, surgery for ileostomy April 4, 2017
May 2017 CEA - 2

Posts: 54
Joined: Sat Apr 05, 2014 8:28 pm
Location: Bradenton, florida

Re: No more scans, feeling scared

Postby Dorat » Wed Feb 21, 2018 3:06 pm

Thank you all of you for your response, my Oncologiest agree to do a scan and I just had blood work today. Going back next week for my scan. Wow I can not believe how times flies.
37yr Mother of 4 girls and 1 boy
Dx 1-22-2014
Cc T2N2bM0 (37/47 LN)
Surgery 2-6-2014
Folfox for 6 months
Clean scan 6-10-2014
Finished chemo 8-18-14
Clean scan 8-25-14
Clean colonoscopy 2-26-15
Clean scan 3-9-2015 NED
Port Out 4-3-2015
Clean scan 9-9-2015 NED
Clean scan 2-28-2017 NED 8)

Posts: 54
Joined: Wed Jan 06, 2016 2:28 am
Location: USA

Re: No more scans, feeling scared

Postby risto » Thu Feb 22, 2018 3:50 pm

I'd agree with going with the NCCN guideline. CT scans are not harmless and in fact are mildly carcinogenic. The guideline represents the best risk/reward.
DW Dx 7/15, 41 yo, st IV, 3+ liver mets: 11.3 cm, 7cm, 3cm. MSS.
KRAS, APC, SMAD4, TP53 mut.
7/15-10/15: FOLFOX+bev. x8
11/15-12/15: SIRT (Y90)
1/16: Toxic Hepatitis, chemo break
4/16: Liver resec. fail
5/16-7/16: FOLFIRI x6
8/16: Liver resec.
8/16-11/16: FOLFIRI x6
2/17: IMRT/Xeloda x25
4/17: LAR
6/17: CT: Progression. Peri, Lung, Liver mets. FOLFIRI x6
9/17: FOLFIRI+Bev x5.
11/17: CT: Stable. 5FU+bev. maintenance x5
1/18-2/18: Surgery for SBO
5/18: ascites, acute liver injury

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: No registered users and 39 guests