Switching back to Pembro

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henry123
Posts: 209
Joined: Sun Oct 08, 2017 3:25 am

Re: Switching back to Pembro

Postby henry123 » Mon Sep 23, 2019 12:54 am

Month 27 .
Infusion every six weeks.
CEA under control.
Have started some non-vegan foods.
Still taking aspirin and continuing with juicing.
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
4/18 2
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
6/19 .9 CT clear
1/20 NED Opdivo stop

Rock_Robster
Posts: 454
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Switching back to Pembro

Postby Rock_Robster » Mon Sep 23, 2019 3:06 am

henry123 wrote:Month 27 .
Infusion every six weeks.
CEA under control.
Have started some non-vegan foods.
Still taking aspirin and continuing with juicing.

Outstanding Henry, well done and thanks for the update. Although I’m not MSI-H, your signature was one of the ones that motivated me in the early tough days.

Cheers
Rob
Male 37; Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+
3 LN; 4 liver mets
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed a liver spot
08-11/19 - FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 - Liver resection #2
02/20 - Ileostomy reversed

User avatar
henry123
Posts: 209
Joined: Sun Oct 08, 2017 3:25 am

Re: Switching back to Pembro

Postby henry123 » Mon Sep 23, 2019 3:57 am

Rock_Robster wrote:
henry123 wrote:Month 27 .
Infusion every six weeks.
CEA under control.
Have started some non-vegan foods.
Still taking aspirin and continuing with juicing.

Outstanding Henry, well done and thanks for the update. Although I’m not MSI-H, your signature was one of the ones that motivated me in the early tough days.

Cheers
Rob

Best Wishes, Rob
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
4/18 2
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
6/19 .9 CT clear
1/20 NED Opdivo stop

User avatar
henry123
Posts: 209
Joined: Sun Oct 08, 2017 3:25 am

Re: Switching back to Pembro

Postby henry123 » Wed Feb 05, 2020 11:36 pm

Finally after almost 3 years of immunotherapy and 2 years of clear CT and blood work , the onco team has decided to stop further infusions.
It is still largely an uncharted territory but some data has emerged to suggest that it is time to remove the immunotherapy life jacket .
Tighter monitoring regime for a year.
A bit scary but I guess you have to stop at some point.
Have to focus on a healthy lifestyle and stress-free mindset.
My wife and daughter are a bit freaked out but that's understandable.
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
4/18 2
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
6/19 .9 CT clear
1/20 NED Opdivo stop


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