Seven years NED this week

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Redtexa5
Posts: 181
Joined: Thu Aug 02, 2012 11:41 pm
Location: Austin, Texas

Seven years NED this week

Postby Redtexa5 » Thu Mar 02, 2017 10:46 pm

Well folks thought I would drop by and check in and say I am still here. All you people that are just diagnosed I am proof you can come out the other side of this thing and I assure you NOBODY thought I would be seeing 2017 when I was diagnosed in 2009. Take it from me, being stopped in the halls of the hospital by strange doctors and being told they had heard about you is more than a little disconcerting, but I am still here and not looking at leaving anytime soon. Baylor Scott & White’s bona fide medical miracle right here, not the type of recognition I ever looked for but what can you do.


Jay you still around down there in New Zealand? Hope everything is well with you.

Take care all

Redtexa5
Start of symptoms 9/08
Dx Stage IIIc/IV CC 2/09
T4bNxM0
Colostomy 2/09
Radiation/5FU 3/09-5/09
FOLFOX 6 6/09-8/09
9/09 Tumor removed Colostomy reversed
10/09-1/10 FOLFOX 6
3/10-2/15 NED
2/14 Colonoscopy NED
2/15 Colonoscopy NED
6/15 PET/CT NED
2/17 7 years NED

BIG ROB 69
Posts: 62
Joined: Sun Aug 28, 2016 2:00 am
Location: Long Island, NY

Re: Seven years NED this week

Postby BIG ROB 69 » Fri Mar 03, 2017 12:12 am

Congrats bro!
3/18/2015 DX CC Stage3/4 49YO MALE IN NEW YORK
Inoperable...hepatic artery
11/15 oper to rem block...colon bypass
4/16 oper to remove scar tissue
5/16 Lynch pos.
10/16 Two bile tubes installed to relieve jaundice
So far I have done the three main chemo drug rounds and on 12/19/16 start Keytruda.
No chemo after 8/3/16 CEA: 10/14/16-409 12/19/16- 887 Mostly my CEA was in the 140-180 range.
CEA: 1/9/17-415 1/30/17-156.2 2/20/17-120.8 3/13/17-98 4/21/17-83.6 5/12/17-64.7 6/1/17-32.1
7/25/17-32.6

stu
Posts: 603
Joined: Sat Aug 17, 2013 5:46 pm

Re: Seven years NED this week

Postby stu » Fri Mar 03, 2017 3:08 am

Delighted for you, enjoy!!
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

fightergirl
Posts: 5
Joined: Mon Feb 27, 2017 8:35 am

Re: Seven years NED this week

Postby fightergirl » Fri Mar 03, 2017 5:12 am

congratulations and very encouraging.thank you!
Dx: 8/16 Colon Stage IIB, T4N0M0, age 50
colon resection 9/16
Folfox: 10/10/16 - 1/20/17
CT Scan 2/28/17: NED

fumaros
Posts: 214
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Seven years NED this week

Postby fumaros » Fri Mar 03, 2017 8:26 am

Congratulations! This is great news.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Seven years NED this week

Postby Maia » Fri Mar 03, 2017 8:32 am

How wonderful to hear, thank you so much for sharing, Redtexa5!! Congrats!

CatzinDJ
Posts: 35
Joined: Thu Dec 22, 2016 12:06 pm

Re: Seven years NED this week

Postby CatzinDJ » Fri Mar 03, 2017 1:08 pm

Great post! Thank you.
53 & Female
DX: Rectal Cancer (RC) diagnosed in Thailand
Tumor Location: Rectum
Tumor type: invasive adenocarcinoma
Tumor size: 4 mm
Tumor grade: low grade
Baseline CEA value (4.46) 5/2016
CEA 6/2/2016 4.8
Lynch- Negative.
LAR 7/13/2016 in Seatle, Wa
Home 7/18/2016.
CEA 12/9/2016 2.8
CEA 6/8/2017 5.6
Colonoscopy and Cat scan June 2017 NED? A nagging suspension of mine about the CEA rising.

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dianetavegia
Posts: 2633
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: Seven years NED this week

Postby dianetavegia » Fri Mar 03, 2017 3:21 pm

HI Tex and congratulations!
Your sig is confusing. Stage III/IV ??

My tests are at the end of this month/ beginning of April. UGH
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Eight yrs, 11 months since original dx. Five yrs. 7 months post liver resection. NED November 2017!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

justin case
Posts: 4186
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Seven years NED this week

Postby justin case » Fri Mar 03, 2017 7:57 pm

Redtexa5 wrote:Well folks thought I would drop by and check in and say I am still here. All you people that are just diagnosed I am proof you can come out the other side of this thing and I assure you NOBODY thought I would be seeing 2017 when I was diagnosed in 2009. Take it from me, being stopped in the halls of the hospital by strange doctors and being told they had heard about you is more than a little disconcerting, but I am still here and not looking at leaving anytime soon. Baylor Scott & White’s bona fide medical miracle right here, not the type of recognition I ever looked for but what can you do.


Jay you still around down there in New Zealand? Hope everything is well with you.

Take care all

Redtexa5

People have always told Me, if you get cancer, your in the right place, when you live in Texas. Just hit 5 years, after reversal !
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

justin case
Posts: 4186
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Seven years NED this week

Postby justin case » Fri Mar 03, 2017 8:00 pm

dianetavegia wrote:HI Tex and congratulations!
Your sig is confusing. Stage III/IV ??

My tests are at the end of this month/ beginning of April. UGH

T4, means an intrusion beyond the colon, not stage 4 . Dianna
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

User avatar
bitchslapped
Posts: 1349
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Seven years NED this week

Postby bitchslapped » Sat Mar 04, 2017 12:01 pm

NEDsville is a great place to live Redtexas5. Congratulations...nice to hear from you!


Best Wishes,
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

michelle c
Posts: 1845
Joined: Wed Dec 02, 2009 3:58 am

Re: Seven years NED this week

Postby michelle c » Sun Mar 05, 2017 6:58 am

Great news! I was diagnosed in 2009 also. May you remain NED always.
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Seven years NED this week

Postby DarknessEmbraced » Sun Mar 05, 2017 2:05 pm

Congratulations, that's wonderful!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

PainInTheAss
Posts: 661
Joined: Tue Jul 02, 2013 3:08 am

Re: Seven years NED this week

Postby PainInTheAss » Mon Mar 06, 2017 5:56 am

Redtexa5 wrote:Well folks thought I would drop by and check in and say I am still here. All you people that are just diagnosed I am proof you can come out the other side of this thing and I assure you NOBODY thought I would be seeing 2017 when I was diagnosed in 2009. Take it from me, being stopped in the halls of the hospital by strange doctors and being told they had heard about you is more than a little disconcerting, but I am still here and not looking at leaving anytime soon. Baylor Scott & White’s bona fide medical miracle right here, not the type of recognition I ever looked for but what can you do.


Jay you still around down there in New Zealand? Hope everything is well with you.

Take care all

Redtexa5


Very encouraged to see a T4b/IIIc Ned at 7 years. I hope to be a fellow inspiration in another 3 and half years. Congratulations!
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

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dianetavegia
Posts: 2633
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: Seven years NED this week

Postby dianetavegia » Wed Mar 08, 2017 4:45 pm

justin case wrote:
dianetavegia wrote:HI Tex and congratulations!
Your sig is confusing. Stage III/IV ??

My tests are at the end of this month/ beginning of April. UGH

T4, means an intrusion beyond the colon, not stage 4 . Dianna


Their signature says
Dx Stage IIIc/IV CC 2/09
Rectal staging is greek to me but this appears to be saying either/ or III or IV.
Last edited by dianetavegia on Wed Mar 08, 2017 4:55 pm, edited 1 time in total.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Eight yrs, 11 months since original dx. Five yrs. 7 months post liver resection. NED November 2017!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2


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