Postby thubler » Sun Feb 26, 2017 10:05 pm
So I got my PET scan results back the same day. I had two enlarged lymph nodes in my mesentery. One measured 12mm x 11mm and the other was inferior at 9mm. Both had SUV. The larger had SUV of 1.1 and the smaller was 1.6 SUV. Both had "little if any metabolic activity" per the report. My Oncologist sends me an email basically saying the lymph nodes are "most likely benign" and he wanted to rescan in three months. Great news as far as I was concerned, 3 months of not thinking about cancer every minute. My family has a big vacation planned and I was just promoted at work so three months would have gotten me past that and I would have been able to really enjoy myself. So fast forward a week and I had an ultrasound on my gallbladder for some unrelated issues. My oncologist emails me and tells me that he presented my case to the cancer board and he now wants to order a CT guided biopsy. He is unsure if its even possible per the radiologist. Talk about the wind getting knocked out of my sails. I was so excited about the results and now am worried and frustrated. I had one week of not constantly worrying. I wish my oncologist would have told me a week ago that he wanted a biopsy instead of being so optimistic and giving me a false sence of reassurance. Throughout Chemo I just wanted that break, however short to have no evidence of disease but havent got there yet. Just so pissed right now. I pray this isnt cancer. I just finished chemo in November and cant imagine going back on it or going back to light duty at work (Im a police sergeant in 10 days). Well Im sitting in the parking lot of my gym at 10 pm. Im going to go in and beat the crap out of myself (physically not literally) now its how I deal with it.
III b CC @ 35 yoa.
two primary tumors on ascending/transverse stage 1 and stage 3.
Lynch Positive
Resection 05/16
2/41 nodes +
FOLFOX 6/16-11/20/16
Clear Endoscopy and Colonoscopy 12/6/16, 02/13/18,01/24/19,02/27/20,02/18/21,05/24/22
CT 02/07/17 enlarged mesenteric node.
Clear PET 02/15/17
Stable CT 06/05/17,10/16/17,04/02/18, 01/08/19, 01/14/20, 01/05/21,03/07/22
Deported 11/03/17