Going for It

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mike218
Posts: 28
Joined: Mon Dec 07, 2015 5:34 pm

Re: Going for It

Postby mike218 » Fri Feb 24, 2017 11:11 am

your message was the 1st thing I read on the board this AM-and I have to say sums up what I am trying do do--I still get bogged in "what ifs', listening to funeral choice music (I 'm not joking), but most of the time just enjoying the time that I still feel good--fortunately my wife plans ahead for us like we will make it--I'm only 2 years since dx. and major surgery at MSK hopefully next month (remove colon tumor, attack liver mets and hopefully HAI pump) --I've finally agreed to quit 2nd job after surgery so evenings can be home with her ---quantity and quality time is much more important
Keep posting
mike
Colon Ca surgery 8/28/14-open laparotomy, hemicolectomy, 1 area 1/23 nodes positive, left hemicolectomy site, 10/34 nodes positive
6 months chemo FolFox (oxyplatin held 2 doses neuropathy
T4aN2b--K-Ras positive
2015 scope April clear
CT 3/2015 no disease some lung nodule
CT 7/15 lung nodules stable
CEA up 10.8 in Sept-CEA 19.3 in Oct.
CT/PET November 11mm left para aortic lymph node
HIPEC? proton therapy?
March 2015 Folfiri /Avastin 6 treatments
can't find tumor
May 2015-CEA rising-waiting on tumor

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Going for It

Postby BrownBagger » Fri Feb 24, 2017 11:23 am

The HAI pump has "cured" a good number of people on this board, Mike. They don't all post anymore, but it's an impressive number. Just ask Juliej, among others. If Kemeny gets her hands on your case, you'll probably live a good long time.

Getting your head straightened out after dx is tough. For me, I finally came to the realization that "I can't live like this"--in fear, in other words. Choose not to, and you should be OK.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Going for It

Postby LPL » Fri Feb 24, 2017 4:47 pm

BrownBagger & debb,
Thank You So much for sharing your stories and your 'Go for it' - it gives such hope for others looking at an unknown future.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

justin case
Posts: 4266
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Going for It

Postby justin case » Fri Feb 24, 2017 8:06 pm

BrownBagger wrote:My, I'm getting chatty these days. Must be because I'm all caught up on my work and don't have any medical stuff for another month or so. So, please bear with me, if you choose, as I ramble on.

As I've observed many times before, cancer forces you to make some tough life choices--choices that you can't put off or ignore. It forces those of us who like to procrastinate into action, whether we like it or not. It's not a bad thing, if you want to look at it that way.

I decided early on, as part of getting my head straight, that I wasn't going to let my health problems get in the way of me living my life the way I want. And for the most part, I haven't. But it doesn't get any easier as the disease progresses and the end appears to be not that far off. Still, I go for it. I have a contract renewal for some freelance work coming up, and while I'm not sure I'll be able to fulfill the one-year obligation, I'm going for it. I've never mentioned my health situation to these people in the six years I've been working for them, and don't intend to now. I imagine they know, but I'm not bringing it up, and I don't imagine they will, either. That approach has gotten me this far, and I see no real reason to change. Another example is a business trip to Sweden in June. I don't know what kind of shape I'll be in in June, but I went ahead and made the plane reservations, hotel, rental car commitment, etc. How would I feel if I bailed and June rolled around and I was doing just fine? Pretty bummed, that's how. The list goes on. My wife and I have been planning to relocate from NY to Wisconsin in the spring of 2018, and I have big plans for work to be done on the family tree farm, where we'll be living. Is that a realistic approach, all things considered? I don't know, but I'm going for it just like I would if I didn't have this crummy disease. That's probably the most important thing in my life at the moment, and I ain't giving it up.

I truly believe that if I had given up on my hopes, dreams and opportunities years ago that I'd be dead now. Nothing to live for.

Being mostly a Swede myself, and have several relatives in Wisconsin, I would think you must proceed with your current endeavor! Now, it should be all about you, my friend ! I'd love to go to Sweden, so please send pictures ! You, have been an inspiration in my life, and my survival!
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Wonderfullymade
Posts: 140
Joined: Tue Jan 12, 2016 4:33 pm

Re: Going for It

Postby Wonderfullymade » Fri Feb 24, 2017 10:44 pm

Eric, you are such an inspiration to me as well!

I have decided to do as much as I can as long as I can and believe with God ( and a few good scientists and Drs) anything is possible!

Thank you for having such a great attitude and sharing it with all of us!
Wonderfullymade
DX 3/2015 53
Stage IVa CC w/liver met
BRAF/KRAS wild type MSI-High (MLH1, PMS2) not Lynch
Folfox 3 cycles
5/2015 ER for subtotal colectomomy due to perforated colon, ovary removed
Folfuri/Pantiumumab 5 cycles
8/2015 liver resection, gallbladder removed and new LN
10/2015 CT scan new nodes
10/2015 Pembro started CEA 2.2
5/2017 stable lung things, coltis, lymph nodes stable cea 1/2017 1.1
9/2017 NED CEA 1.1 ( stopped Pembro)
2/2019 ER for DVT/ PE
2/2019 clean CT (NED) CEA 1.1

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Cowgirl918
Posts: 319
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: Going for It

Postby Cowgirl918 » Sat Feb 25, 2017 12:09 am

I love your rambling posts. They speak to us of courage, of joy and of life. I too agree with your attitude. My doc asked me if I couldn't slow down a little when I became ill.
Why? :?:
I told him I was planning to run at "Mach 7" until the engine burned up. Go for it buddy! We are with you.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80% removed
5/29/2016 Compressed lumbar spinal fracture (riding accident)
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
10/18/16 Autoimmune Diseases confirmed

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Going for It

Postby Ajane » Sat Feb 25, 2017 12:41 am

Eric, I love your attitude! You're such an inspiration to all of us here, showing us how we should live our lives. Studies have shown positive attitudes extend lives and your attitude is such a fine example of just that! So, thank you for sharing.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Going for It

Postby LPL » Sat Feb 25, 2017 6:21 pm

BrownBagger,
Good idea to visit Sweden in June :D
I'm Swedish and I can NOT recommend the winter months... they are Dark & Cold!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Going for It

Postby BrownBagger » Sun Feb 26, 2017 8:15 am

I'm going to Jonkoping for a forestry fair. I've been there before for that same event, and it was quite beautiful. I was up in Umea once in the winter, and then traveled farther north. Good thing for saunas!

I have to say, Sweden is the most civilized country I've been to. Finland is close behind
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Going for It

Postby LPL » Sun Feb 26, 2017 12:03 pm

Hi BB,

You & I have the Love of the Forest in common :)
I am a mycologist and there is a wonderful freedom to explore forests in Sweden due to an ancient custom called Allemansrätten. I presume you know about this?!
"This beloved Swedish custom was formalized in 1994 when it was added to the country’s constitution. " http://modernnotion.com/thanks-to-allem ... m-to-roam/
I hope you will have a nice time on your upcoming trip to Sweden. And btw, if you go up to north of Umeå, in June, the sun will be up all night 8) - it must have been dark almost all day when you went 'up there' in the winter :wink:
Yes, I also like Finns & Finland.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

fordodo
Posts: 18
Joined: Sun Feb 05, 2017 10:00 pm
Facebook Username: cara Katzen shalowitz

Re: Going for It

Postby fordodo » Sun Feb 26, 2017 11:55 pm

Such an inspiration! All the best to you.
cos

kiwiinoz
Posts: 1152
Joined: Thu Jan 03, 2013 11:44 pm

Re: Going for It

Postby kiwiinoz » Mon Feb 27, 2017 6:07 pm

Eric
I must echo everyone else and your way of moving forward has helped me through some very dark times, and it still does.
Sweden sounds great, and only a few months to go so I am expecting lots of photos between now and then.
I hope you'll post a lot of photos of yourself after the Sweden trip? I want to see them, and I would hazard a guess that most of the others on this board would too, so keep on living your life as you do.
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

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Rob in PA
Posts: 2005
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Going for It

Postby Rob in PA » Mon Feb 27, 2017 11:31 pm

I've been quiet lately, butt when I see bb on here talking about a major walkabout....I got to say wtf go for it ! get busy living or get busy dying! 8)

I had to edit my last response from last night cuz I already took my ambien and couldn't type for shit!

Cheers
Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED


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