Need advice new member here

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pdd
Posts: 12
Joined: Wed Feb 15, 2017 12:22 pm

Need advice new member here

Postby pdd » Thu Feb 16, 2017 10:29 am

Hello,
My husband went thru colonoscopy on Feb 3rd 2017, and doctor removed 2 polyps but one polyps was too large to remove (2.5 inches) and referred for surgery to remove the sigmoid mass. Has anyone experienced this and what is the process like? We have to meet again with surgeon in a week and half to discuss surgery insructions. Will greatly appreciate it if some help and advice here is given. Thanks so much

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mypinkheaven
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Facebook Username: Sally Cunningham
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Re: Need advice new member here

Postby mypinkheaven » Thu Feb 16, 2017 1:28 pm

Was a biopsy done on the polyp?
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

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SEWHAPPY
Posts: 86
Joined: Tue Nov 15, 2016 4:25 pm

Re: Need advice new member here

Postby SEWHAPPY » Thu Feb 16, 2017 3:45 pm

Welcome to the forum! You will want to be sure that you have a board certified colorectal surgeon as they are the ones with the experience you need. Depending on what they know from the colonoscopy, he may need additional scans to learn more about the tumor. I had CT scans before meeting the surgeon.

I had a sigmoid colon tumor that required colon resection or colectomy. They cut out about 8 inches of colon and re-attached the ends. I spent about 3 days in hospital, limited pain, and was eating small meals of regular food in 3 days. Be sure to walk as soon as possible in the hospital, as that will help your bowels "wake up" after surgery. For about 2 weeks I had urgent and frequent, small poops but things got more normal in the following weeks. I was back to work part-time in 3 weeks and full time in 4.5 weeks, but I work a desk job. I am now 3 months out and can eat everything but large amounts of popcorn and bowel habits are a good, new normal.

Once the surgery is over, you will discuss the pathology report with your surgeon and/or oncologist. Based on what they found from the tumor and any surrounding lymph nodes, they will stage your husband's cancer and discuss whether or not he needs further treatment.

Best wishes! Laurie
Female age 51.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Need advice new member here

Postby teri3 » Thu Feb 16, 2017 4:17 pm

My sigmoidectomy was fairly simple too. I spent 4 days in the hospital and also had very little pain. As stated earlier ...walk...walk..walk to get the bowels going. I felt pretty good when I went home, just had to take it easy for a couple days. I still have urgence when I have to have a bowel movement but it has gotten better.
Did they biopsy the the polyp? I knew going in mine was cancerous.
Best of luck!

Hugs
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

pdd
Posts: 12
Joined: Wed Feb 15, 2017 12:22 pm

Re: Need advice new member here

Postby pdd » Thu Feb 23, 2017 5:22 pm

teri3 wrote:My sigmoidectomy was fairly simple too. I spent 4 days in the hospital and also had very little pain. As stated earlier ...walk...walk..walk to get the bowels going. I felt pretty good when I went home, just had to take it easy for a couple days. I still have urgence when I have to have a bowel movement but it has gotten better.
Did they biopsy the the polyp? I knew going in mine was cancerous.
Best of luck!

Hugs
Teri

Hi Teri

Yes they did biopsy the larger polyp. It was adenoma. I think it means precancerous? The surgery is next Friday. Not sure what kind of surgery they will do. Did you had ileostomy?

pdd
Posts: 12
Joined: Wed Feb 15, 2017 12:22 pm

Re: Need advice new member here

Postby pdd » Thu Feb 23, 2017 5:44 pm

mypinkheaven wrote:Was a biopsy done on the polyp?

Hi Pinkheaven,

Yes the biopsy was done and it was adenoma. I think it means precancerous? Your sugery seems simple. Did you had an ileostomy either perm or temp?

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mypinkheaven
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Re: Need advice new member here

Postby mypinkheaven » Thu Feb 23, 2017 6:21 pm

pdd wrote:
mypinkheaven wrote:Was a biopsy done on the polyp?

Hi Pinkheaven,

Yes the biopsy was done and it was adenoma. I think it means precancerous? Your sugery seems simple. Did you had an ileostomy either perm or temp?


An adenoma is benign, but may turn cancerous. I didn't have an ileostomy, so my surgery was relatively "simple". Good luck to you tomorrow!!!!!!!!!
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

pdd
Posts: 12
Joined: Wed Feb 15, 2017 12:22 pm

Re: Need advice new member here

Postby pdd » Thu Feb 23, 2017 6:34 pm

mypinkheaven wrote:
pdd wrote:
mypinkheaven wrote:Was a biopsy done on the polyp?

Hi Pinkheaven,

Yes the biopsy was done and it was adenoma. I think it means precancerous? Your sugery seems simple. Did you had an ileostomy either perm or temp?


An adenoma is benign, but may turn cancerous. I didn't have an ileostomy, so my surgery was relatively "simple". Good luck to you tomorrow!!!!!!!!!


Happy to hear you didn't have an ileostomy.Oh adenoma is benign, whew! Surgery is on 3rd march will keep you all posted :) hope my husbands surgery is simple too :)

pdd
Posts: 12
Joined: Wed Feb 15, 2017 12:22 pm

Re: Need advice new member here

Postby pdd » Thu Feb 23, 2017 7:10 pm

SEWHAPPY wrote:Welcome to the forum! You will want to be sure that you have a board certified colorectal surgeon as they are the ones with the experience you need. Depending on what they know from the colonoscopy, he may need additional scans to learn more about the tumor. I had CT scans before meeting the surgeon.

I had a sigmoid colon tumor that required colon resection or colectomy. They cut out about 8 inches of colon and re-attached the ends. I spent about 3 days in hospital, limited pain, and was eating small meals of regular food in 3 days. Be sure to walk as soon as possible in the hospital, as that will help your bowels "wake up" after surgery. For about 2 weeks I had urgent and frequent, small poops but things got more normal in the following weeks. I was back to work part-time in 3 weeks and full time in 4.5 weeks, but I work a desk job. I am now 3 months out and can eat everything but large amounts of popcorn and bowel habits are a good, new normal.

Once the surgery is over, you will discuss the pathology report with your surgeon and/or oncologist. Based on what they found from the tumor and any surrounding lymph nodes, they will stage your husband's cancer and discuss whether or not he needs further treatment.

Best wishes! Laurie


Hi Laurie

Thanks for your reply. I read that yours had 8 inches cut off and resected. My husband 's is 2.5 inches and will be going for surgery on march 3rd. The biopsy on the colonoscopy for larger polyp turned out as adenoma. So let's see what surgery will be done. Did you had an ileostomy?

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Need advice new member here

Postby DarknessEmbraced » Thu Feb 23, 2017 7:17 pm

I had half of my rectum and half of my sigmoid removed in 2014. My tumor was at the junction between the sigmoid and the rectum. I had an open surgery and went home on the 6th day. I was marked for an illeostomy but didn't need one. I had staples holding my incision closed. After surgery I was nauseous for a few days. It took me a long time to regain my stamina following surgery. I hope your husband's surgery goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Need advice new member here

Postby teri3 » Thu Feb 23, 2017 7:53 pm

I didn't have a ileostomy either. Mine was in my sigmoid colon which they removed.
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

pdd
Posts: 12
Joined: Wed Feb 15, 2017 12:22 pm

Re: Need advice new member here

Postby pdd » Thu Feb 23, 2017 8:03 pm

DarknessEmbraced wrote:I had half of my rectum and half of my sigmoid removed in 2014. My tumor was at the junction between the sigmoid and the rectum. I had an open surgery and went home on the 6th day. I was marked for an illeostomy but didn't need one. I had staples holding my incision closed. After surgery I was nauseous for a few days. It took me a long time to regain my stamina following surgery. I hope your husband's surgery goes well!*hugs*


Hello DarknessEmbraced,

Thanks for your reply and this is really giving me hope from what I read from your posts. My husband too is marked for ileostomy and now just waiting for surgery time on 3/3. Surgeon mentioned he will be doing the laparoscopic one so not sure what kind of surgery he will be doing depending on the size of tumor and location. Will keep you all posted. *Hugs*

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SEWHAPPY
Posts: 86
Joined: Tue Nov 15, 2016 4:25 pm

Re: Need advice new member here

Postby SEWHAPPY » Sat Feb 25, 2017 8:44 pm

Pdd - Nope, no bag was needed for me. Will keep you in prayer next week!
Female age 51.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.

pdd
Posts: 12
Joined: Wed Feb 15, 2017 12:22 pm

Re: Need advice new member here

Postby pdd » Sat Mar 04, 2017 10:54 am

Hi everyone,
UPDATE: My husband finished with his surgery. All went perfectly well. They did joined the healthy parts together. No ileostomy bag needed. Adenocarcinoma mass fully removed. Did not spread. Sent to lab for pathological testing. Will get results in 7-10 days. He is still in hospital and sore. Otherwise all is well. Will update at a later time for more info. Thank you for keeping him in your prayers. God bless you all!

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Need advice new member here

Postby LPL » Sat Mar 04, 2017 6:37 pm

pdd wrote:
UPDATE: My husband finished with his surgery. All went perfectly well. They did joined the healthy parts together. No ileostomy bag needed. Adenocarcinoma mass fully removed. Did not spread. Sent to lab for pathological testing. Will get results in 7-10 days. He is still in hospital and sore. Otherwise all is well. Will update at a later time for more info. Thank you for keeping him in your prayers. God bless you all!

:) That sounds SO Good !
To you from another caregiver/wife: Please now let your shoulders 'fall down'.
Keeping my fingers crossed for a good pathology report.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets


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